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Old 09-06-2004, 03:59 AM   #11
lovey1
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Join Date: Sep 2003
Location: kokomo, In.
Posts: 52
Re: All Chronic pain sufferer's please respond!

Hi Fisherpard,
I know where you're coming from as I also get scared when I think about the time my pain will return with full force. I am on Suboxone and have been for almost a year ( I haven't had to increase my dose due to tolerance building up, thank goodness!!) The only drugs that have saved me from the severe pain are Celebrex and Vioxx. I particularly like the Vioxx because it seems to have less side effects. They are both wonderful anti-inflammatories and my own Mother takes Celebrex for fibromyalgia with excellent results. Might be worth looking into for you to take.
Hope this helps and Congratulations on 20 days of the Sub. You must be one tough Cookie!!
Mary Beth
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Old 09-06-2004, 10:56 AM   #12
flyfishingdaddy
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Join Date: Aug 2004
Posts: 42
Re: All Chronic pain sufferer's please respond!

Vioxx did nothing for me....Celebrex,Helped but Bextra..did the trick...ask your Doc...if you have not tried it...it works.
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Old 09-06-2004, 12:48 PM   #13
Twinlynn
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Join Date: Oct 2003
Location: New York
Posts: 1,067
Re: All Chronic pain sufferer's please respond!

Fisherpard! :-)

I just lost a looooong message to you--hit the wrong button or something and it disappeared. So! Let me try a shorter version! :-)

First, congratulations on Day 20---You have earned every single "passenger mile" on your journey!

I know little about Fibro--other than it is very painful and can rule your life. That must be just miserable to deal with.

And, the way I feel about clinical depression--having my own long struggles with it--depression can be even worse than physical pain. Being "sad" or "having the blues" bears little resemblance to a real clinical depression--where a "storm" in your brain stops the neurotransmitters from producing "norephenephren"--a chemical that you absolutely need in your brain to feel anything "pleasant" or "happy"--or even just 'normal"!!

Situations like yours...where you have dealt with such stress--fighting so much physical pain, along with addiction, withdrawals, etc...can too easily build up to this type of brainstorm that causes clinical depression. Sure, if you were just "feeling sad"....then saying such things to yourself such as "I need to think about other people worse off than me", or "it's up to me to make my life a happy one" or "my problems are so little compared to others", and "one day at a time", etc, etc, might help. But--if your "sadness" has become a chemical depression--you are, unfortunately, in no position to feel ANY of those things. That is the nature of chemical depression. Until your brain rewires itself (here's where antidepressants can be a miracle), and your receptors are transmitting the chemicals you lack, you just feel an overwhelming sense of darkness. So...I empathize so much with your depression.

Are you working with a specialist in this area? Even thought your body has been so resitant to antidepressesants--there has got to be a combination that will work for you. You need to have a doctor who is attacking the situation in a scientific way....keeping careful note of which drugs in which doses in which combos you've already tried. And you need to keep a detailed notebook for each time of the day--a.m., afternoon, p.m, even middle of the night!--to list exactly how you are feeling. Worse in morning? Better as day goes on? It took my psyc. a long time to get me the right combination. The important thing is that you trust your doctor to be taking the time and having the patience to get you to the right drug. And try to give him as much information as possible re. your changing moods each day..something he/she can refer to. PLEASE don't give up!!

Your mention of that Cymbalta give me the first hopeful indication that maybe, just maybe, scientists are finally connecting depression with opiate withdrawal!! This is a connection that people like you and I need no convincing of!!! A pill that tackled both those problems would be a true miracle for us!! :-)

Well, Fisherpard....it's good to read your posts again, and I think it's just wonderful that you've reached day 20.

Please just keep updating us! :-) Lynn
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Old 09-06-2004, 06:09 PM   #14
fisherpard
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Join Date: May 2004
Posts: 222
Re: All Chronic pain sufferer's please respond!

Thanks Lynn and Mary Beth,

Today has been a tough day for me. Day 21. I am in chronic pain in about every joint in my body. My depression always gets worse as the physical pain does. I am in a catch 22 and really am lost at what to do.

Here is me thinking out loud. I know in my mind that I could continue down this road with opiates. I have proved that to myself. It is hard but I have went through the hardest part already. However, All the time I was on Suboxone I had very little depression and low pain. My quality of life seemed so much better and I never thought about abusing. It seems to have a ceiling effect and the tolerence does not seem to be a issue like other forms of opiates. Anyone you know of on the Sub ever over long term have to increase dosage due to tolerence?

I know I can't go back to Suboxone but maybe Subotex might be the solution. I always was afraid that I would have a major attack of very severe pain which happens several times a year . It lands me in the hospitol on IV narcs to control the pain. I mean it is the laying in the floor begging to die pain. It is due to diverticulitus of the colon and the cramps are un-bearable. I have had three cases this year. Two I caught in time and one that left me in the hospital for a week. The Suboxone you can not add other opiates to or it will send you in withdrawels. That is not the case with Sudotex. If I was on it and had to go to the hospital they could give me IV narcs for pain.

I have done a thorough research of the drugs and some doctors are using both for pain control. The only way I would even consider this road is if my Sub doctor would RX me for pain management and not addiction. I really feel after a lot of soul searching and talking to other chronic pain people and the concensus is the real difference is the abuse part. I am addicted to AD's but does that make me a addict?? I don't abuse it, I take it just like HBP pill.

My question would be am I a big failure for not continuing the road to sobriety or am I wanting to just be able to feel like going bike riding with my daughter. I sure can't in the condition I am today.

Anyone who reads this please give me your thoughts on this as I see my Sub doctor this week.

thanks much,
fisherman
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