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Old 09-22-2004, 12:45 PM   #1
skykeene
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Post Bisphosphonates & Rheumatoid Arthritis

Greetings;
I just want to warn everybody that has Rheumatoid Arthritis Do Not take any Bisphosphonates; Actonel, Fosamax, etc. Taking these drugs can induce Systemic Lupus. This is a known fact that has been hidden along with other serious side effects.
These Bisphosphonates are supposed to help with bone restoration in Osteoporosis and Paget's disease. But they are lethal to our body's natural bone regeneration.
These drugs also can cause destruction to the eyes. "Bisphosphonates slow the resorption of calcium from bones, helping to prevent them from becoming fragile. The eye problems include conjunctivitis, abnormal or blurred vision, eye pain, scleritis (an inflammation of the sclera, the outer coating of the eyeball), and uveitis (an inflammation of the uvea, a middle lining that includes the iris). The PDR does not describe these uncommon ocular side effects as resulting from the drugs, even though some of them have been on the market for over 25 years."N Engl J Med. 2003 Mar 20;348(12):1187-8.
I hope you can help spread the word about these drugs. I have been severly damaged by Actonel and feel it is my duty to warn others about these much advertised drugs.
Best Regards,
Karen

I have suffered severe damage due to Actonel and I feel it is my duty to inform as many people as I can about these terrible drugs and their side effects.
Best Regards,
mark54

Last edited by Administrator; 09-23-2004 at 11:32 AM.

 
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Old 09-28-2004, 12:47 AM   #2
Iwantacure
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Join Date: Aug 2004
Posts: 212
Re: Bisphosphonates & Rheumatoid Arthritis

Thanks for warning me. I really care for my vision as I know also the medical world couldn't care much about my vision.
God bless you.
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Old 10-05-2004, 11:22 PM   #3
NancyH
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Join Date: Apr 2001
Location: Washington State
Posts: 1,672
Re: Bisphosphonates & Rheumatoid Arthritis

Great, I'm taking actenol and have been for 3 yrs, and I have some vision problems. What can a person take for osteoporosis if not these drugs, I have it pretty severe, excersise daily eat calcium til it is coming out my ears, maybe that should be suffice? Darn drug companies could care less what it does to us as long as they make big profits for it, makes me very angry!

Last edited by NancyH; 10-05-2004 at 11:24 PM.
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Old 10-06-2004, 05:36 PM   #4
Iwantacure
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Join Date: Aug 2004
Posts: 212
Re: Bisphosphonates & Rheumatoid Arthritis

You should care a lot about your vision. It's very important. If I was you, I would go to another doctor.
All the best
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Old 10-10-2004, 08:56 PM   #5
nooyawker
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Join Date: Jul 2003
Posts: 61
Re: Bisphosphonates & Rheumatoid Arthritis

I found your post very interesting. Two yrs ago I started fosamax and broke out in hives. Two specialists told me I was mistaken. I recently started actonel and developed a hideous rash with blisters on inner elbow. I believe it was the actonel. I have taken mtx, arava and many other things with no side effects. I have taken enbrel for 2 yrs. and have no side effects and it is helping the RA enormously. I am very reasonable and try to trust my doctors. I now take only enbrel and calcium and sit in the sun for 10 minutes a day for vit. D. It wouldnt surprise me that osteoporosis drugs are the next things pulled off the market.
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