I'm New Here

[Kitten1980]

I won't make a huge explanation and take John's thread off topic , but I had non-specific CHD and currently have a ASD that doesn't seem to be causing significant problems as of the last round of tests, just PVCs & PACs and a heart murmur. I can live with that LOL.

John, I would assume that the "cardiovascular disease" would be more related to the untreated hypertension than anything else. You should ask your dr. what exactly the problem is - so that you can become more educated on what you can be doing now to slow the progression of the disease and increase your overall health.

Are they planning to do a fasting blood-glucose test to determine if diabetes or pre-diabetic conditions are present?

It really sounds like you might want to consider finding another doctor and getting some second opinions from someone who talks instead of quacking. This is basic information that your dr. should be discussing with you.

[hypokelly]

Dear John23,
Have you ever been checked for anything else other than heart.
I am no doc, but in reading these boards, your symptoms sound a lot like Antiphospholid syndrome(Hughes syndrome-sticky blood)
Look on the lupus board for more info.

[Excelsoir]

Do you have an implanted defibrillator which paces and electrically converts (with a shock) a fast heart rhythm back to normal ? Have the doctors ever used the term "ventricular tachycardia" (V. T.) to describe your fast heart rhythm ? I am interested because I have this implant, and may be able to help you a little more if I could identify your situation. I am not medically qualified.
Good Luck,
Excelsoir

[john23]

no never heard that term
I have heard them call it pulmary or something that sounds like that

right now they are more worried about the fact that my heart rate drops after acceralting

I have an implanted reveal, to record the heart rate in case I do have a stroke or accedent

Yes I have been checked for other things, and I have done research on my own. concidering how long the problem has had to progress, and the number of symptoms I have it all fits in with the diagnoses. I have even had an mri to determine if I had any damage to my brain from lack of oxygen.

a better explanation is my heart has muscel spasams basicly, the worst problem is its doing more fequently over time. I am on zestril , topral xl and lexapro to help with the effects but according to all the specialists I have seen there isn't any way to "cure" it , has to run its course but we can slow it down a little " modify" it so it isn't as painfull.

A pacemaker wouldn't help because I don't have an electrical problem, its in the muscle tissue itself. 20 years of haveing a hyperactive heart has litterly worn it out.

everyone in my family with health problems has the exact same heart condition, and now we know whats causing it.
Glad we finialy found it because I have a 2 year old daughter and a 2 month old son.

[jpos]

HI,I am sorry to hear of your ordeal. You need to find out more specifics on your diagnosis.

I have had the Reveal in since last April. I don't have the same probs you do. I have neurocardiogenic syncope, inappropriate sinus tachycardia, mild valvular disease, and mild pulmonary hypertension.

I got the Reveal implanted, because it seems I may be having seizures, too, that are very similar to the syncope. I was diag. with epilepsy late 2001, but some drs. are back and forth as to what is the syncope and what are seizures. Fun.

One problem I have found with the Reveal is the automatic recording/saving of the arrhythmias is a problem, because the device loses telemetry too often. My last check they made me lay in different positions and adjusted the device in hopes that it won't lose telemetry so often.