Pineal Cyst

[BCarp0707]

Dear mojen,

Thank you for the info on Dr. Lu, I will contact his office.

My cyst is not as large but my symptoms are terrible and getting worse. I will not give up hope to find help.

Thank you again.

[BCarp0707]

Belle45,

I understand your frustration, I too have heard the "Don't worry about it, the symptoms can't be from the cyst". Well I also know that they are. Blurred vision, extreme headaches, inability to sleep. Be persistant and look for other Dr's and don't settle for no help. I get very aggravated but I won't stop.

Dodger8 was a big help to me. You can E-mail her @
glorybound101@hotmail.com, she is very kind.

Best of luck to you.

Beth

Dodger8 & BCarppo707,
Thanks so much for the reply to my email and for the info coming. I have an appt. with my Neuro on the 14th and IF I decide to keep it then I will go armed with all of the info I have been gathering and comments from other PcP(pineal cyst people).

I am so disgusted with all 4 of my doc's that I don't want to see any of them anymore. What I find so difficult to come to terms with is how callous they are and how they act like they are god's gift to their profession and how dare patients question them and if we do how they ignore you. My internist is the one who I am most upset with because he just blows me off when I tell him that I HAVE NOT been the same since I had that dreadful Viral Meningitis. I KNOW ME, I KNOW MY BODY, I KNOW HOW I WAS BEFORE so WHY, WHY, WHY does he just dismiss it and tell me, "Karen, I just think it's stress, you shouldn't still be having symptoms from VM." I've looked him in the eye and told him, "Well maybe I shouldn't but I AM." [blood pressure gets high just thinking about it]!!!!!

I've done extensive research on VM and it is rare for people to have permanant damage from Viral Meningitis BUT it is a valid claim. I've saved the info I've found on that and just want to throw it in his face and say EXPLAIN THIS.

OK, I better got off my complaint soapbox or else I'll be sideways and twisted all night (more so than usual).


Good luck to all and thanks for any info you give.

Belle

[Tigre]

I also have a pineal cyst. Mine is 5mm by 9mm and I was also told not to worry about it. I will have another cranial mri next june to see if its grown. Doc says if it hasnt grown then to forget about it. They are more concerned with the PTSD/panic/anxiety and severe depression I have from a head injury in January. Funny thing is I have kinda forgotten about it and put all my symptoms down to the other diagnosis i had...like post concussion syndrome, bulging discs and now permanant neck and right shoulder muscle damage. I live real close to winter park and would love to see what that doc thinks but right now I see so many docs I just dont want to go to any more. I also have a dropped bladder and other things going on. I cant decide whats more important because i can no longer drive due to partial complex seizures (also a result of accident) and I dont know if my symptoms are from the host of meds im on or what. Im so confused. I wish you all the best.
Take care,
Tigre
PS
I was also told that unless the cyst reaches at least 1cm most docs wont touch it and that the cyst of my size wont cause symptoms....who knows anymore?

[texciana]

I have a cyst of about 1 cm. The MRI radiologist didn't sound very concerned about it. All he suggested was that I have another MRI done with contrast just to be double sure. I haven't gone back, though. I figured if he wasn't too concerned, then he probably only recommended I go back so he could bill my insurance company for another MRI. Anyway, I don't experience any of the problems you have described here. I was having terrible migraines earlier this year for about 3 months (which prompted the order for the MRI) after I got off of the antidepressant Lexapro but that has since cleared up. I sleep fine and my vision is fine. The meds I take include Unithroid and Provigil and these have been working great to keep my energy level up. I take 5-HTP (a serotonin precursor similar to St. Johns Wort) which I believe helped take my migraines away. Anyway, I just thought I'd share my story. Everyone is different. Something that can have a profound effect on one person may not have any effect at all on another. Good luck to you.

Tex