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Old 03-31-2003, 12:53 PM   #1
eva1964
Junior Member
 
Join Date: Mar 2003
Location: Ft. Payne, Al , USA
Posts: 21
Unhappy dad wants to know

I know there is no answer to his question. My father has had lung cancer now for a year. Went through the radiation/chemo. Then the Chemo alone. Went into remission and lived to see his 50th wedding anniversary. Then in December started getting sick again and then in Jan,Feb and first of March had been hospitalized four times for fluid in the pleural. His 4th trip required a chest tube with a drainage tube into a chamber. They got 1500cc of fluid out. The time before that they sent it to the Moffit Cancer center in Tampa , close to where he lives anyway its cancer. Now it has mastisized ( excuse the spelling) anyway, he is very ill. I seen my father in Sept. and now I am here now from Alabama and do not intend to leave untill he passes away. His weight has dropped significantly, his appetite has subsided and his interests have now changed. We have hospice coming in to check on him and he is on meds and oxygen, He wont take loratab or the oxycotin (torpedo pill) as he calls it. He is still doing okay with the pain. Tylenol is all I have seen him take. He complains of pain in is shoulders and when he coughs in his left lung where the cancer is. Now mestasized means spread. Now his Oncologist is a cold hearted blank. He no longer wants to see him and has no need to cause he has refused any more treatments. Actually there is no more but more chemo and trial drug Iressa that he will have to take. But no cure. So prolonging his death is something he doesnt want to do. Now my dad called me to his side and held my hand and said "sweet baby, I know it may be hard for you but will you get on line and see, please see what my final days will be like and what to expect. please baby" just breaking my heart. I cant tell him , first only god knows how long he has and with the cancer taking over his left lung and his heart is in so much stress his rate is 100-125 continuously. So with the pulmonary artery damaged from the radiation and he had a pulmonary embolism and is on cumidine (blood thinner) for preventing another one. He also has interstitual lung disease and COPD in both lungs, His lung profusion tests came back bad to where surgery in the beginning was not an option. I will miss him so much when he leaves me but I took care of my Grandmother and watched her suffer and he was there too. And his greatest fear is we will have to watch him suffer. He wants to go quick and prays every night that god will take him quick. He lost 10 lbs in five days and his fingers are really flat and the nail beds are blue and he continuously has sweating spells and we live in florida its 80' and he wants the heat on. My sister volunteers at hospice and we have a book on the final days and we feel he has a few months if he goes slowly. Today we got him in the shower chair and he felt so good to take a shower but it wore him out so we had to put him back to bed and then let him rest before he got dressed. He then let me shave him with his electric shaver and we got him to the living room and he read some in his bible and then we noticed him sleeping so we put him back to bed. Oh I am rambling on. can someone let me know about how long he has. I know God will take him when it is his time to go. But maybe someone can help me see the signs . Thank you And God Bless
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Old 03-31-2003, 04:34 PM   #2
littletinkerbell
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Join Date: Feb 2003
Location: scotland
Posts: 67
Post

hiya eve
I lost my dad 3 weeks ago to the exact same thing. How long has your dad got well god is the only one that could answer you but I will tell you about my dad. About a week before he died he had 2 really good days where he was chatting and he got a wheeled into the shower room had a shave and he seemed to get his personality back my dad was a joker and he had us in fits of laughter it was such a strange experience, anyway just after that the next day he was extremely tired couldn't be bothered with anyone and he slowly drifted into a coma 2 days he was in a coma and the nurses told us his time is near so don;t leave him my mum and me stayed all night by his side holding his hand. The stages we noticed were his breathing became laboured his hands had a tinge of blue in them , then gradually from the top of my dads head down he seemed to turn blue he started shallow breathing then he quietly stopped breathing but not at any time did he seem in pain it was such a beautiful thing to see upsetting but also beautful. Please tell your dad everything you ever wanted him to hear and be there for him going with what happened to my dad I don't think it will drag I think your dad will be at peace soon in gods beautiful garden. Thinking of you and your family eva, keep strong...mags...
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Old 03-31-2003, 05:54 PM   #3
LeisaH
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Join Date: Apr 2002
Location: Calgary, Alberta, Canada
Posts: 160
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Eva..... Get him to take the Iressa. I really believe that helped mom with the symptoms. It should help with the liquid on the lungs. Mom never had to get a drainage tube, and was only on oxygen for a couple of days. Mom was on nothing but Tylenol until her last week maybe week and a bit. Her mental status went down, and I had to resign myself that the person was not mom. She needed to be attached to a personal alarm. She still recognized us up until again the last week, week and a bit. She died very dignified

Please make sure you get a hold of a video camera and tape him now, so that the memory you have will be the ones to come.Get his voice on tape. This is going to be hard on you. Leaving what you know behind, going to nurse, then leaving and trying to pick up your "normal" life. Keep in touch with us all. Rant and ramble all you want!

with Kindness
Leisa
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Old 04-01-2003, 07:14 PM   #4
eva1964
Junior Member
 
Join Date: Mar 2003
Location: Ft. Payne, Al , USA
Posts: 21
Post

Thanks to all who have written, Dad having good days and bad. Laid in bed with him last night and held him and cried and said all I could think I needed to say. It is comforting to know I have this time. Took some pictures of him on his digital. As weak as he is he wanted me to help him to the computer room and he wanted to show me some stuff on his computer and how to work things and believe it or not he felt better so maybe his strength is building back up from the removal of the chest tube. He also had to show me all the finances and what life insurance he had and then talk about burial. He has already planned all that, but mom dont know if she wants to bury him here in Florida or back to their home town in Chattanooga Tn. I just listen, not to give advice. Confusion and anxiety overwelms my mother. All I do is listen and only tell her not to make any decisions during her grieving process. Thanks to all that read my thoughts and God bless and my prayers go out to all on the Board. Thanks Eva
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