Scars turn colors

[mollybrown]

PS Cheryl, I also have black 'spots' on my legs and one big one on my big toe which is the worst RSD place.

[RSDtrinity]

I'm really glad to hear the zanaflex works for you mollybrown, I have the horror story of the scar above my eye from zanaflex. It had dropped my blood pressure to 30/40 and I was passing out every time I stood up. Didn't help me to sleep either, I was waking up all thru the night (which I do normally) but when I needed to walk around to calm my leg I would just fall to the floor blacking out. Grrr. Wish it would have worked for me. Just a note to keep track of your blood pressure while on zanaflex, it's one of the not so fun sideeffects. - Jessica

[sharon1030]

Hi Molly,

Welcome back. My pain doc used to be at New York Hospital. Is that where your doc is? My ortho is across the street at The Hospital for Special Surgery. Just wanted to tell you we had something in common. I don't go to NYH anymore because my doc moved to CA to head the pm at Cedars Sinai so I found a doc who's on Long Island (closer to me ).

Sharon

[jo1234]

Dear Cheryl:

I also get scar color changes. My original site is on my lt ft plantar area. The scar will turn purple and when it does the pain is intense. It's a blue-purple color. I had a SCS inserted last May and now I am getting the same color on that scar. When that happens I get so hyper. Pain is up, hyperness is way up. I take a Xanax when this happens. Go to my happy place. Man that stuff just sends me to la-la land, but I'm not far from there anyway. I haven't had any of the black color. When I was first diagnoised with RSD my OMD told me my foot was reacting as if I had frostbite. I also get the sweats, which Neurontin has helped, the sweats were so intense I wanted to vomit. I changed pajamas 2-3 times per night. The color of my body would turn a bright red. I was at a dinner party (before dx) and I was flashing about every 5 minutes, someone told me I looked sexy so bright red. My husband laughed and I thought this has to be one of the most unsexy times I have ever had!!! he-he. Looking back its funny, but when it was happening I thought I was having intense menopause, nah, just lucky me had RSD.

Does anyone get the hypersensitivity? It has been a problem, along with the color change, since I became the recipient of RSD. I would love to talk to someone about that.

For now,
Liz
"Somebody's praying me through"