Osteoporosis and Colitis?

[Marg001]

Hi there,
Just wondering if anybody out there has Osteoporosis and also a bad back?
I myself ws diagnosed with Spondylolisthesis and had Ulcerative Coltis quite a while ago on which I was taking Predisnone for which in turn basically caused my Osteoporosis. I have severe lower back and on a Fentenyl patch for that. But recently I have been having major pain in both my hips, especially when I am walking or even standing for a period of time. Once in a while I get pain in may other joints but nothing like the pain in my hips. I know when I went for my last bone density test they told me it was very bad in my hips. I am at a lost now on what to do to try and help myself. I have an appt. for a Rhumateologist soon. Apparently anyone that has had a bowel reconstruction due to colitis can not tolerate the meds for Osteoporosis.I heard there was some type of I.V. infusions, if anybody knows about this I would love to hear from you or from anyone else that could help me with this. I am at my wits end

[Travel]

The name of the drug that I know about that is injected is Forteo. There are several threads here about it. You can also go to Eli Lilly Drug Company website to learn more.

Good luck.

[Oldbones]

Originally Posted by Marg001

Hi there,
Just wondering if anybody out there has Osteoporosis and also a bad back?
I myself ws diagnosed with Spondylolisthesis and had Ulcerative Coltis quite a while ago on which I was taking Predisnone for which in turn basically caused my Osteoporosis. I have severe lower back and on a Fentenyl patch for that. But recently I have been having major pain in both my hips, especially when I am walking or even standing for a period of time. Once in a while I get pain in may other joints but nothing like the pain in my hips. I know when I went for my last bone density test they told me it was very bad in my hips. I am at a lost now on what to do to try and help myself. I have an appt. for a Rhumateologist soon. Apparently anyone that has had a bowel reconstruction due to colitis can not tolerate the meds for Osteoporosis.I heard there was some type of I.V. infusions, if anybody knows about this I would love to hear from you or from anyone else that could help me with this. I am at my wits end

Hi Marg001...
I had major hip pain for about 3-4 weeks before it got so bad that I had to have assistance to walk. Thankfully, my rheumatologist ordered an MRI on both hips and discovered that my hip was fractured. One doctor had been telling me that it was arthritis. I am so thankful that I have a great rheumatologist. He's very knowledgeable and checks things out thoroughly. I'm on Forteo injections also for my osteoporosis.....just like Travel's post above. Thankfully, I've had no bowel reconstruction so I can't help you there. Hope you find a solution that will help your bones.
~Oldbones

[CrohnieToo]

Originally Posted by Marg001

... Apparently anyone that has had a bowel reconstruction due to colitis can not tolerate the meds for Osteoporosis.I heard there was some type of I.V. infusions, if anybody knows about this I would love to hear from you or from anyone else that could help me with this. I am at my wits end

Hi, Marg. I've had a resection of the mid ileum due to Crohn's disease so we are in the same boat. The meds that it is best for us to stay away from if possible are the oral bisphosphonates, Actonal and Fosamax. However, there are two infusable bisphosphonates I am aware of Zometra (zolendronate) and Aredia (pamidronate). I've had one infusion of the pamidronate. It was scheduled to be a two hour infusion, but I experienced some very mild tingling at the lips and the wrists, so my infusion drip was slowed to a 4 hour rate. That tingling could be considered as a reaction. The day after the infusion I encountered about 10 hours of intermittent traveling bone and joint aches, chilled thru and thru and was queasy tho not quite nauseous. Due to the Crohn's giving me a lot of grief with nausea I had good ole Phenergan tabs on hand. They also make me SLEEPY. So, I just popped a Phenergan tab, climbed into a nice snug down sleeping bag under the bed covers and slept 10 hours away. I woke up feeling fine w/no other "problems". As you know, the infusions bypass the intestines eliminating the risk to our Inflammatory Bowel Disease (IBD).

Another option might be the relatively new daily self-injection, Forteo. That would also bypass our poor ole sensitive intestines. My Endocrinologist is "prepping" me for starting Forteo now.

Good luck and God bless.

[taape]

Marg00l,
I have severe osteoporosis and herniated disc in my back. I believe that the severity of the osteowas caused by the many epidural injections I had for my back which I was told were safe. Hopefully, with taking the Forteo and Calcium, etc., it will improve since I've stopped the epidurals permanently. Can get back surgery until this does get better.