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Old 11-09-2002, 10:32 AM   #6
mmec
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Join Date: Nov 2002
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Thank you everyone for your comments. We have done a mono test and it was negative. We made an appointment with an ped.infectious disease specialist at Riley's childrens hospital. She also sees a ped. nephrologist for her kidney problems and we are sending copies of everything to him. He is in Cleveland. We moved to this area less than a year ago and still hear wonderful things about this Dr. Go figure? We will definately not be returning to her and I did pick up a complete copy of her records. She did feel her stomach and said that her spleen was not enlarged. I'm sorry to the 17 year old. Don't give up! I would be interested in the name of the infectious disease guy you know about. We live in Indiana but our insurance is good anywhere in the US. I have a brother who lives outside of Boston. If we don't get any answers here we are thinking about going to Boston Children's Hospital. I hope it doesn't have to come to that though. Thanks again for all of your help. MMEC
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Old 11-09-2002, 11:09 AM   #7
mms72
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I'm so sorry about all your going through! I agree with the above posts --- find a Doctor who will do whatever it takes for your child. Have they given her other antibiotics-- some virus's have mutated now and the antibiotics that used to work on them are no longer effective. Keep us posted! And good luck!!!!
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Old 11-09-2002, 12:53 PM   #8
Super Sarah
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NMS72,

The original post did say that she was onto her third lot of antibiotics. Also, I hate to tell you this that antibiotics only work against bacteria and not viruses. Staph is a bacterial infection, so they should work if you get the right one. Something like Mono is a virus and if she does have a virus infection somewhere in her body, then no amount of antiboitics will work because they just do not kill viruses. You need antiviral drugs such as acyclovir to act against viruses.

As I said before, it could be related to the renal problems and it could be a virus that needs to be isolated or it could also be a parasitic infection.

 
Old 11-09-2002, 05:16 PM   #9
purple2067
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Join Date: Aug 2002
Location: Staten Island, NY USA
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Hi, I just read your post and I feel so bad for you and your family. When I was a kid I was also sick all the time and nobody except my mother and grandparents(and sometimes my father!) believed me. Everyone thought it was all in my head. They even had me see a child psychiatrist who told them basically that I was truly sick and that they were the ones with the mental problems. (although I did keep going to her anyway because it helped me to be able to talk about how being sick all the time made me feel). My pediatrician was absolutely wonderful. He knew I was sick too, (it turns out that I have severe allergies) but he did not always know how to treat me. None of the other doctors that he sent me to believed that I was sick. But my pediatrician was a real angel. Finally, my mom found an pediatric allergist to bring me to, and he did extensive tests and was able to pinpoint the cause of my illness. I know it sounds like it's not that bad, but allergies can really wreak havoc on your system. There wasn't a week that I didn't have an ear infection. But this doctor was able to help me a lot. I still go to him.


I now have severe eye problems. I have been told by a few people that maybe it is in my head. I brought that up to my eye doctor, and I said that I am starting to believe it myself. You know what he told me? He said "If it were in your head, how would I be able to see the physical symptoms?" This is what you have to keep telling yourselves.

You know your daughter better than any doctor does. If her symptoms are this serious, there is definitely something wrong. Has she been tested for something like chronic fatigue syndrome or Epstein Barr Virus? (that can cause extreme fatigue, soar throats, fevers, etc...)

Good luck, and I hope you find some answers. And when you do, go back to that first doctor and throw the results in her face. I just hate it when doctors think that they know everything.
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Old 11-12-2002, 07:58 AM   #10
Super Sarah
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Purple,

You have to remember that the mind and the body are linked. They cannot be separated as they are part of the whole that makes up you as a person and sometimes when you are unable to deal with something on a mental/emotional level, your body will throw up physical symptoms to force you to deal with it.

You should remember this, that unfortunately, the mind and the body are both part of you and are linked, but yes, some things are not just purely mental or physical problems, although they can be.

 
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