I guess I have POTS AND ADDISON'S! So back on the prednisone....

[GettingWellAgain]

Lisa,

I really feel for you, and am praying for you. How hard it must be, especially since you have children. I am scheduled to get tests TOMORROW finally, for adrenal insufficiency. I was supposed to get them last week, but everything with the doctors is taking longer than expected. What scares me about your story is that my problems actually started with a supposed balance/inner ear disorder, but after many doctors and the top neurologist at Yale-New Haven Hospital in Connecticut, a cause for my severe dizziness and vertigo for nine months straight was never found. After the "inner ear disorder" and the massive antibiotics they gave me "in case it was a bacterial infection", I've been sick, but with symptoms resembling adrenal problems instead of dizziness. Maybe I should mention to my doctors the possibility of POTS, even though you said that it's rather rare. Thank you for sharing your story, and I wish you better health!
~Katalina

[tcnj_mom]

Katalina, your mention of massive antibiotics has me wondering if you might have a yeast situation going on. Yeast can get a foothold during antibiotic treatments and can present like chronic fatigue/adrenal problems. Did you take diflucan or another antifungal after the antibiotics? Maybe you should, it might help your symptoms if nothing else is found.

[GettingWellAgain]

tcnj mom,

Yes, I definitely think I do have a yeast problem going on as well as the adrenal problems, or maybe the yeast is the causative factor, I'm not sure. Either way, I'm still awaiting testing, and if nothing is found, I'm going to work closely with the WONDERFUL naturopath that I've found to get control of the yeast problem. I never did take diflucan or an antifungal after all of those antibiotics, but I was taking acidophilus and other probiotics at the time. I think the probiotics kept everything under control for a while, but I think the massive antibiotics along with the severe stress I was under caused me to get the full-blown Candidiasis. I'm glad more people are starting to find out about this whole yeast issue, and I'm glad you mentioned it because I have HEARD of adrenal problems being related to yeast, but have never personally talked to anyone who has gone through that.
Thanks,
Katalina

[goody2shuz]

Hi Sadie & Lisa.....My brother 2 years ago had black out spells and was hospitalized for almost 2 months. Everytime he stood up he would pass out. He had a tilt table test which showed the worst positive results the cardiologist and neurologist had ever seen. They diagnosed him with a form of POTS that they had never seen. He was released on lopressor and changed to topranol and functions pretty well until Saturday. At that time he presented with uncontrollable tremors involving all 4 extremities and his head and neck violently twitching for over 3 hours. He cannot walk....my SIL has to carry him on her back otherwise he'll black out. He has taken his max of 400mg of topranol which barely controls his headache and twitching. A cardiologist is presently working him up for pheochromocytoma on a 24 hour urine test.....my sister in law just called and said that his tremors are worstening since he can't take the topranol while on the urine test and she is calling an ambulance. I see that there are some here that have an understanding of this disease and any help would be appreciated. thanks......Goody

[tcnj_mom]

Katalina, I'm glad you were taking acidophillus and probiotics, they should have at least kept the problem to a minimum.

About five years prior to be diagnosed with autoimmune Addison's Disease, I had a gangrene appendix removed. I don't know if gangrene is the same as yeast (I always thought gangrene was like a mold but I don't know for sure), but I have always assumed there is a connection to my diagnosis, however I cannot get a doctor to confirm that. But someone else that I know was diagnosed after having a yeast problem in his sinuses. And his doctor told him that he believes that all autoimmune processes begin with a yeast condition.

I hope the medical profession is finally putting the pieces of this puzzle together.

Good luck with your testing.