SCARED-please help, 3 year old asthma out of control?

[babiespalace]

Thank you guys.

My baby has started on xopenex last week and I give it before she goes to bed, then I give her the pulmicort about a 1/2 hour to hour later. Because I know she will start will breathing hard and wheezes. It doesn't seem to help during the night and I can only give it every 6 hours. No one has recommened her being on a decongestant, but I did have her on one and she finished the whole bottle and I figured it wasn't working. I prop her head up every night about 30 degrees sometimes higher. It seems that she breaths the best on her stomach. Not that that says anything.

I am so frusterated-why can't I get any answers from these doctors. No one looks at the big picture. I am really starting to think her reflux maybe the cause. I don't know what else it could be.

Her ped recommended he see the ENT to look at her vocal cords and throat for d*******ies, or some kind of obstruction. When he asked why I was there and that I should have seen all these other doctors prior it took me off gaurd. How was I supossed to know that?

What should the ENT be doing for her? Because I have no clue. I told him she sneezes yellow drainage and thought it was a sinus infection, but he was not worried at all about it and didn't put her on anything. Is that normal. Doesn't yellow drainage mean infection?

You guys are great. I have learned a lot being on here and want to thank everyone for helping me.

Her surgery is schedualed for next thursday and they said recovery will be 5 days at least.He said it should help her breathing at night, but he can't guarentee it, because he isn't sure what is causing it. ( I am so wore out and scared every night that she is going to stop breathing and not start again.

How common is that? She always starts again, but it scared the heck out of me.

[BYHOPE1113]

If that is all they have you doing then you are in SERIOUS need of a pulmonary specialist for her asthma.

On a good day here is my daughters regiment: (when she's not sick and taking an antibiotic) This is just our normal day to help keep things under control

Morning:
Zyrtec - 1 tsp
Sudofed - 1 tsp
Prilosec - 1 capsule emptied into yogart or applesauce
Xopenex + Atrovent in nebulizer
When our pulmonary doctor added the Atrovent it really helped my daughter
Flovent - 4 puffs

Mid Day:
Sudofed - 1 tsp
Zantac - 1 ml

Nighttime:
Zyrtec - 1 tsp
Sudofed - 1 tsp
Zantac - 3 ml
Singular - 4mg
Flovent - 4 puffs with aerochamber
Xopenex + Atrovent in nebulizer

Now that's a good day, here's what we add when she's actually coughing a fair amount and I hear some wheezing:

Xopenex every four hours
Atrovent every eight hours (so every other time I give her a breathing treatment I give her the Atrovent)

Here is a bad day and were calling the doctor because I really don't want to end up in the emergency room at night:

Xopenex every two hours
Atrovent every four hours (again, every other time she gets the Atrovent)

If we have been fighting an attack for a while and it's getting worse, if her respiratory rate is greatly elevated and she's having difficulty breathing then here's what I do:

Xopenex
20 minutes later I give Xopenex and Atrovent
20 minutes later I give Xopenex again.

If she doesn't show improvement then we are on our way to the ER. To be perfectly honest I'm on my way to the doctor or ER before it gets to this last stage but the doctor said we needed to have a plan just in case.

I haven't had to give her treatments every two hours in a while but I really believe it's because we have her allergies and reflux somewhat under control.

Call that Pediatric pulmonolgist today. Good Luck and keep me informed, who knows you new doctor might find the cure and I want to know if they do.

[mom9302]

My 2 year old son was the same way and his doctor had tubes put in his ears and the asthma attacks have almost stopped completely. It was a God send for us. I hope your little one gets better really soon I know how hard it is when your child is having severe trouble breathing.

[babiespalace]

thank you guys. I am going to see a pulmonologist. She was on atrovent last year and it really helped her, but the same asthma doctor told me he doesn't prescribe it on children at home. I said you did last year and he didn't say anything. That is another reason why I changed doctors.

I am sitting here crying because I just don't understand why she is still like this. Last year at this time she was completely asthma free and I took her off all meds. She only had one mild attack over the summer and started back up in nov and has been sick ever since.

Her eyes have been red since (with rings around her eyes) and her nose stuffed and coughing. She was short of breath most of the winter but doesn't seem so much short of breath now. I guess because it is getting warmer.

I wanted to ask-she started snoring about 2 months ago. Does that mean anything. Loudly too. Could this be acid reflux. She is currently taking prevacid 15 mg, but not sure if it is working or not.

I really hope I start getting answers from these doctors. I am starting to break down and feel like I'm doing something wrong. Being on here has gave me a lot of hope and new ideas. I just hope we can figure it out. She has been sick way too long. She has been on orapred a lot this winter for extened periods. Once a month or more. It has been at least a month since she was on it last, but it has done something to her immune system because she keeps getting infections and some of her blood work showed it.

Thank you guys for all of your input!!!

[babiespalace]

[QUOTE=BYHOPE1113]If that is all they have you doing then you are in SERIOUS need of a pulmonary specialist for her asthma.

On a good day here is my daughters regiment: (when she's not sick and taking an antibiotic) This is just our normal day to help keep things under control


You know no one has ever gave me an asthma action plan???? I wonder why. No wonder I am always stressed and don't know what to do.

What does a pulmonologist do??