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Old 05-24-2005, 09:13 AM   #51
rosebuddy
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Re: Help plz. 18 y/o w/rare medical problem

multiple chemical sensitivity disorder
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Old 05-24-2005, 12:25 PM   #52
JoeJack101
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Re: Help plz. 18 y/o w/rare medical problem

Well, I think I may have found what is actually related to my problem. I have (in my opinion a large number of the symptoms associated with an adrenal abnormality. I went to see an endocrinologist in Houston yesterday, and he did notice that my blood pressure dropped 16 points when I stood up as opposed to the B.P. taken when i was sitting down. He said that may be an indicator that we need to test the adrenals. I did see a web site that said that patients with adrenal problems often report a sensitivity to medications and herbs. I have to go back there for testing in two days or so. Hopefully, if it IS adrenal problems, and if we can treat it, then my sensitivity will go away. I am just REALLY HOPEFULL right now. This is going to take a lot of prayer on my part.
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Old 05-24-2005, 12:42 PM   #53
Kat1966
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Re: Help plz. 18 y/o w/rare medical problem

Hey, I am so glad that you came here. We care.... I am sorry I can't help. But I 've had some health problems and these are the best people to get help from when you need some help...
I have only been here oh 2 weeks and I love this board and the people have been so gracious, kind and patient enough to take the time to help...
I hope some one here can help you.
The Best,
kat1966
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Old 05-25-2005, 05:10 PM   #54
PJ59
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Re: Help plz. 18 y/o w/rare medical problem

Hi JoeJack101,I really hope you find some of the answers to your problem and the best of luck at your appointment. Please keep us posted.
Take Care.
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Old 06-08-2005, 03:27 PM   #55
JoeJack101
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Re: Help plz. 18 y/o w/rare medical problem

Turns out the ACTH Stimulation Test indicated that my adrenal glands are responding perfectly fine... UGH!

I have done some searching online and Mitral Valve Prolapse seems like the only likely explanation at this point.

"People with mitral valve prolapse are especially sensitive to all kinds of drugs and medications." ConsciousChoice: Mitral Valve Prolapse

"i have a mild prolapse of my mitral valve...there are some odd symptoms...sensitivity to drugs, if it's stronger than Tylenol my body freaks out, imagine the aftermath of the Demerol a mean nurse gave me" Blogger: janebejane.com

"Most people with MVP have no symptoms...Those who do usually experience one or more of the following:...Extreme sensitivity to medications" Heart1.com

On Mitral Valve Prolapse Syndrome: Research & Support Website a thread on the forum asks, "what other health problems you guys have besides MVPS??" Of the approx 25 replies to the post, at least ELEVEN PEOPLE listed 'sensitivity to meds or drugs' as one of the symptoms they have along with MVP or MVPS.

I'm not going to be able to start college this fall if I don't get a solution to this... Maybe MVP isn't the cause, but I just hope God leads me to an answer soon enough. I am going to see a cardiologist tomorrow in Houston, and I am going to request that he check me for MVP through an Echocardiogram (not to be confused with an electrocardiogram).

Any advice, knowledge, comments are still welcome and appreciated.

Sincerely,
Derek
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