Symptoms

[graphicalg]

HI Jennyflower and WandaB. first question my other umm problems are Asthma (all my life) meds for that aren Ventolin 200mcg salbutarol + Seretide 250mcg day and night.
OK soryr i haveno idea how its spelt and the name i go on from what i remeber as a child, Rayes syndrom, Basically No Sweat, No Saliva, No Tears, Med for that, Visco tears liquid eye gel 2x daily wear my glasses as my retna's look like scratched ice due to this. ummm any type of replacemtn saliva product as needed. and sweat well you cant do anything for that.
I have a thing called Triple A syndrome, which is in with the addisons until the addisons was seperately diagnosed. Basically it is an oesophageal problem with the whole body included, i have had many surgeries to resolve this (i couldnt eat with out trowing up everyhtign would get stuck, now its fingers crossed though with the occasional Oesophageal Dilataion, for that i take Omeprazole 20mg 2xdaily for GERD.
Co-Codamol or similar for crack in base of spin which gets triggered when i have an addisons crisis.
Blood sugars, i try to help that on and off with occasional diet changes, i used to be on meds for that then takingoff (cant remeber the names) now i check that with accu strips (wife is a Type -1 so we help each other there.
For the addisons, well right now my meds are - DHEA 25mg 1xdaily, Fludrocortisone .1mg 2xdaily, Hydrocortisone 15mg Morning-10mg Evening.
and Chronic sinusitus each year at least twice meds Amoxicillin.
and ED which is related to Addisons and Triple A, meds after being on anythign going- Alprostadil

basically i am a mess from the day i was born hahahhaa

Next question

I have no idea why it is not really controlled yet, we belive its because of my other problems, that it just doesnt get a break being linked to a few other things. and my immune system is so crappy that crisis's are like adrop of a hat. but i am quite a pro and my body to me it is a good thing to others it worries the hellout of them, it can take an extremely low BP level before i go down its just hopw my body haslearnt to deal with it. Everythign test wise is as good as it could be, i havent actually had labs results myself in hand in a long time, but i was in hospital ER-admittance due to a crisis 2 weeks ago or so and they covered everything anfd well i was released 73 hours later so iguess i was A.OK

[graphicalg]

WandaB sorry i missed that last Q, i am In NorthCarolina

[jennyflower]

im just wondering if there is anythign else this could be apart from addison's....would anything else cause hypoglycemia, muscle wekaness and fatigue?

[WandaB]

graphicalg,

You have way too much going on for one person!! Hope "everything" improves for you very soon.

What times do you take your morning & evening doses of hydrocortisone (HC)?

You could try splitting the 10mg evening dose by taking 5mg at noon & 5mg in the evening. Many people do take their meds in only two doses, but many of us take it in 3 or 4 doses. Maybe a bit of it at noon would be helpful to you. It is a "long" stretch between morning & evening. HC doesn't last that long.

Is your sodium & potassium being checked every 6 months? What were your last levels? Taking the amount of Florinef you are could lower the potassium too much. I assume there is a good reason you are on so much.

Are you drinking water all day? When I get a bit dehydrated I get a sinus infection. I have water going in all day long to avoid it & only 1 cup of coffee daily. Lots of other reasons to get a sinus infection, but for me water helps.

It would be good for you to get a copy of "every" lab report for a home file. You really cannot rely on the docs as they often say levels are just fine when in fact they are not.

Has your thyroid been checked lately? Your TSH should be under 2 for you to feel your best. It can be "much higher" & the doc will say it is OK. If you are tired all the time & your TSH is higher than 2 you probably would do better by treating it. What's another pill!!! My endo started treating mine when I complained "loudly" about being so tired all the time. I was near the bottom of the range & of course he thought it was just fine. I just had him increase the thyroid med again to get it under 2. It is now 1.3. He would not have done it without me telling him.

Too feel my best, I have learned from others who have addisons to be very involved in my health care & read those lab reports.

Wanda

[graphicalg]

Jenny yeah i am sure there may be other causes and problems that could be related to your symptoms not sure what off the top of my head though.

WandaB...

TSh 1.5 i belive, potassium levels cant give exact as i said havent had my own reports for a while now but levels there are avergae.

flrinef is that high due to sevral reason but it seems to help,

and i was taking my HC stretched throughout the day but it caused me to always feel sick and have bad stomach cramps all day so it was a lose lose situation.

the sinus problems i cant do much about as that isnt helped with my no saliva is a supposed BIG factor in why i always have sinusitus.

basically i am a mess and thanks for the (hope thinsg get better) i have learnt that i just have to take things with a pinch of salt i learn my limit and by body has definately learnt its limits and comfort levels and i just roll with it, somethigns i can do soemthings i cant.

Thanks