I just do not understand.....will it ever stop

tlily · 07-25-2006, 07:53 AM

Hi all

I am just so frustrated with all of this acid reflux. I wake up in the morning with stomach and chest burning. I suffer all day with throat and stomach burning. My intestines are acting very funny. I can not eat normal or near normal. I can not feel comfortable anywhere. Have not socialized with anyone for 6 months since this started. I feel just misrable. I have tried many cocktails of meds. The first two weeks of trying new meds I feel much better than it comes back. This has happened many times. I get my hopes up and then bam it brings me right down. I started taking one nexium about a month ago and started to feel better. Boy my hopes were high. well about 4 days ago I began taking two nexiums and have not felt any different. Believe me I am trying to think positve. I will give it a month but I am so affaid of not being able to ever feel good. It is becomming very difficult to deal with this.

I am going to see the GI doc tomorrow. I do not understand when these PPIs ae said to heal the redness and all that why some of us are resistant. My test show just a little redness not enough to be causing all of this. Why is nothing working? Guess that is the million dollar question.

Sorry to go on like this this morning but I am so tierd of starting my day off sick and not getting enough sleep. Any words of wisdom......I can sure use some.

Tlily

backslide05 · 07-25-2006, 01:26 PM

Tlily,
have you been dx'd with Gerd or LPR? I believe the Rx for LPR is 2 doses and usually together for best results. I know some people take longer to respond from what I've read. You might want to hang in there.
I can't take PPIs --have too many side effects so am really struggling and can relate to your agony. It is terrible when you are focused every waking moment on what you can eat, can you go anywhere, can you WORK even without having coughing fits, not to mention the constant burning.
I have an interview today for a job, and am panicked I won't go into a coughing attack! The annoyance factor is worse than the pain almost.

Some things that you might try that have helped me (with the burning):
I gargle 2-3 times a day with warm salt water. That seems to sooth instantly and is easy to do. I also suck on black licorice hard candy and slippery elm lozenges (health food store). I started drinking water with chlorophyl in it, not sure if it's helping but supposed to be good for you.

I haven't found the miracle cure but I am still not giving up, but trying different things and taking one day at a time. Deep breathing and trying not to stress also, I'm a very sensitive and prone to stress type of person, so that all contributes I'm sure.

I'm curious to see what your doctor says. Most likely more meds. That's what they are trained to do and why they are called Medical Doctors.

I feel your pain, hang in there and hope it gets better for you.

-Backie

tm3912 · 07-25-2006, 01:53 PM

Tilly,

Maybe you should look into some type of antidepressant. I am not saying your symptoms are in your head, they are not, but when you are in constant pain anyone would get depressed. And when you are depressed your pain seems worse and the worse the pain the more depressed... Obviously it will not cure your reflux but it might help you get some sleep and to not focus on your problem all day long.

On second thought maybe something like lorazepam (sp) might help. It is a muscle relaxant but also helps with anxiety (for some unknow reason). I think it is something that you need to talk to your doctor about. You need to break the cycle of not sleeping, waking up tired, feeling bad (because of reflux AND lack of sleep).

Keep trying all options you will find one that works, but work on getting some rest first and foremost.

Sandy Beach · 07-25-2006, 08:07 PM

You may not respond or do well on any meds. I am struggling trying to find what will work for me too. If things don't do better, I may opt for the surgery.

I have LPR Reflux and am on Aciphex in the morn and Ranitidine at night.

Good luck!!!

taape · 07-25-2006, 09:49 PM

Tlily,
Sorry to hear that your having such a hard time and nothing seems to help reduce the pain. I hope your GI doctor can offer something to you that works. It's amazing how much pain we can have and not much shows up on the tests. It was 5 months of PPI's before I had an endoscopy and by the time I had it, everything look fine. So I think that a little bit of irritation could cause a ton of pain and discomfort. Let us know what the doctor recommends tomorrow.