Hi Everyone-
I am new here an am hoping to hear from some women that have had abnormal paps after a hysterectomy. When I was 24 I was diagnosed with cervical cancer. Although, technically I am not sure that is the correct name. I do not know if they have a name for what I had. I had cancer on my cervix, not in my uterus, but on the "tunnel" on the way from the cervix to the uterus. I have always tested HPV negative. I opted for a cone biopsy at the age of 24 to rid of the cancer, Carcinoma in Situ. 6 weeks after the surgery I was tested again with and the cells had come back. At that point, I had had two children and I opted for a hysterectomy. Not until at the age of 34, 10 years later did I have another abormal pap. The doctor decided to wait for 4 months and retest. Again, an abnormal pap. I decided on laser surgery. I had an normal pap after the surgery. Although, I must say I told the doctor that I feel it was not all removed and that I can feel the cells changing. He said that he has NEVER heard of that before. The only way that I can explain it, is when I DID have a cervix and uterus, it would feel like Braxtin Hicks...or when you are pregnant and baby kicks on your cervix. Ladies who have had children... you know what I am talking about!!! Ok so he thought I was nuts. Now that I do not have a cervix or uterus, the only way that I can describe the cells changing is pin pricks, short and quick. I know this sounds ***arre, but I have researched this and they do say that women can feel this, and when you have had as many abormal paps as I have, you start to "listen" to your body. He did tell me that after the laser surgery if I ever tested positive again he would send me to an oncologist specialist at the University of Washington. Well, I did have an abnormal pap, again, and he wants to re-test in 4 months. Actually he said 6, and I said that develped cancer in 5, are you sure you want to do that. He changed it to 4, smart man.
Bottom line is I do have a question if women out there are seeing doctors that use some type of pain killer. The biopsies are so painful and I have endured so many I am about to scream. Secondly, and most importantly, ladies, I am faced with the posibility of Vaginal Cancer if this tests shows abnormal, they will do a biopsy. I am trying to be positive, but with my family history mother, father, brother, both of my grandfathers on both sides and cousins, it is very difficult. Anyone out there suffered from Vaginal Cancer or the possibility of having it?? I mean it's not like they can remover that. Although, my husband is studing to be a nurse, he is an OR technician at this time, he had performed vaginectomies,the REMOVAL of the vagina. They take your inner thighs, invert them, and make an "canal" and rebuild it. I told my husband that if they tell me that is what I will have to endure count me out. So ladies anyone ever gone through this, I am dealing with possible radation or chemo if this next one come up negative. I know, once again, the doctor will think I am "nuts" for saying so, but I can feel it growing...and spreading...Any advice would be much appreciated!
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