psoriatic arthritis

[chellsbells]

Hey
Sorry to hear your not feeling well I hope it settles down by tomorrow. Its 1.25am now Ive spent the past hour getting sick after taking MTX earlier tonight Im after more antiemetics (things to stop you vomiting) and its finally stopped im sitting in bed now feeling miserable and in pain but should feel better in about 15mins Im just havin a fentanyl (stronger than morphine!!!) lollipop there called actiq Ive been started on them today as im having a bad flare and could hardly walk nearly all my joints are afftected when i flare unfortunately,went to see my rheumatologist today and she thought I was very bad so she gave me the highest dose steroid injection into my a*s and thats helped my hands a good bit but they still hurt its just im able to move them again so its definately brought down some of the swelling but my toes ankles and knees are still very swollen and my lower back, but its brought down my finger and wrist swellin and one of my elbows is less swollen and my jaw has gone down a bit but im still rather uncomfortable.

Basically the outcome of my meeting with Sineád my rheumy was, the steroid injection,better breakthrough ********** so we got onto the pain sprecialist and he said hes give me the actiq lollipops, my oral steroids are increrased too, my MTX was increased to17.5mg today then up to 20mg next week,and then after 3 weeks at 20mg if im not too bad I can reduce oral steroids by 2.5mg,and ive to let them no how im getting on and im to ring next week if Im not much better after the week, so please god I will be.and we decided today that if in teh new year im still having daily small flares and the big flares and i cant get down off the steroids then its time to change my medication, but i can go up to 25mg of the MTX before then.

Im very stressed and upset with everything thats going on and my Nan is back in hospital (shes 66 and is dying from lung cancer which she got due to unsafe industrial fumes where she worked) which is tearing my heart apart as we are really close to her myself and my sister shes a gr8 nana and an amazing friend and its so hard to see someone else you love in so much pain and suffering so much.
My liver tests are 58 they have gone up by 2 but Im suprised it still functions with the amount of medication Im on I take over 30 tablets a day its madness,
Anyway its now 1.47am and im in much less pain after my lollipop and very drowsy thats why it took me so long to write this, im off hopefully to sleep now.
Talk to you in the morning well probablly afternoon ,its 1.54 i keep dozing off, i really hope your pain goes away and the feverish symptoms settle down,please let me now asap how you are
I get cold sweats alot do or did you suffer these at any stage, ive many other medical problems as ive mentioned and a lot of meds so it may just be related to one of them.
Goodnight, well I hope your already having sweet dreams, Ill talk to you really soon and ive my fingers crossed you feel lots better
Luv Chell xxxxx

[Ronnied]

Morning Chell,

So sorry to hear about your Nan, it is always sad when close family members are suffering. You may find you are feeling worse because you are getting stressed about Nan. Don't forget Psoriatic Arthritis stems from psoriassis and that always gets worse when your body is stressed. You seem to be taking quite a mixture of drugs and painkillers, do you think sometimes too many is as bad as none? When i stop them all I feel much clearer in my head and stronger in my mind, but obviously all my joints hurt. Sometimes some drugs can make you feel ill themselves without taking into account your illness. Try to take your mind off things, have you done any christmas shopping? I did all mine in my livingroom! The internet is a very handy thing when you do not feel verywell. Feel the need to go tothe shops just to see the Christmassy things, but at least I havent got to lug heavy bags around. Feel bit better this morning, its usually evening when I am tired. Hope you had a good night after your lollipop! do something nice today. Speak later, Ronnie

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[Ronnied]

Hello Chell

Are you still about? Can we still chat? How are you doing? I have had to stop all drugs as stomach is very painful, bowel probs, and pain in lung! All happened this week. Waiting for hospital appt next week. All my joints are swelling up and I keep going hot. Fed up with it all. Had a very bad week at home as my son was attacked in his office by two youths coming in asking for mobile phones and money. It was awful. Trying to have a lazy weekendto get myself feeling better. Booked Monday off to rest. Just watched X Factor who do you like?

Hows all your aches and pains? Have you managed to have a good week? Did your bowel probs start because of the methotrexate/dmards? I am worried what is wrong with my stomach as it is extremely painful. Doc thinks I may have ulcer from the dmards.

Hope you find time to reply, if not I will understand.

Ronnie

[mcjonval]

Hello. I am sorry I have not been on here in a while. Sounds like you two are going through so much stuff. My husband is doing ok, but still has some problems. We are going to his Rheumy tomarrow and will see what she wants to do. Maybe Embrel...but not sure. He still has stiffness in his finger, diarhorea,(sp) stomach cramps, lot of headachs(but better this week)and once in a while still getting the flu like symptoms. I know it is very hard for you both and for my "H" too. We will keep you's in prayer. We believe that the Lord is a great healer and is able to do mighty things. We pray for him and for me, as I have kidney desease, diabetes for some 20 odd years(shots), blood pressure( under control), cholesterol.....and was on Procrit for a couple years because of the anemia. I was taken off a few months ago. I have had lazer surgery in both eyes due to Diabetes ect....But they are well. I went reasently to have them checked and he saw no problems. TG!! Well, at least I can understand illness and how awful it can be even if I dont understand every thing you all go through. I feel so bad for you all who have so much pain and all that you go through physically and mentally with the psoriasis, and every thing else. I see what My "H" goes through. Hope to hear from you all again and to hear how U are doing today. GBY! mcjonval