no one knows whats wrong with me

[pinkmada]

i think it was a gastro intestinal specialist. my GP says i was misdiagnoses. I just don't understand why they aren't doing anything about the cysts.

[singer1]

When you had blood tests run in the beginning, was your white blood count normal then? Have you seen a Urologist? I have kidney stones and by what you describe, it sounds like you may have passed them and then developed them again or something. I would definately see a Urologist though. Keep us posted!

[DX-]

Pinkmada,

These other folks are right -- you need to be referred to a urologist. Ask your GP to refer you and take copies of your test results.

If your GP thinks you were misdiagnosed, then why aren't they looking into it further to find out what the real diagnosis is? I hear your frustration loud and clear -- and the very BEST thing you are doing is listening to your own intuition in pursuing an answer.

I was misdiagnosed, too. I was told I had cancer and I would be dead within 6 months if I didn't begin chemo! I trusted my intuition and figured out on my own that I didn't have cancer. I got my test results, and looked up all the words I didn't understand, and eventually proved that I had been misdiagnosed. It happens everyday and people get sicker because they don't advocate for themselves.

So keep trusting your intuition -- and stay on top of your GP until s/he sends you to a urologist to review all your tests and symptoms.

Good luck to you.

[pinkmada]

also forgot to say that while i was in hospital in august i started bleeding from the back passage when i went to the toilet but there was only ever blood on the paper, it was a little but more than spotting. I was told that i was constipated and given laxatives which made no difference as i wasn't eating properly and i was going to the toilet regularly every day and it didnt hurt and i wasnt straining. After a couple of months it eased up and it was very light spotting but the last 6weeks it was been the same as it was before and then yesterday (which is why i remembered i hadnt posted it) when i went to the toilet the paper was soaked through with bright red blood and wheni looked down the toilet all i could see was blood, it looked really thick, once i'd wiped all the blood away there was this clear slimey gel stuff on the paper as well that ive not seen before.

I've told my GP and the doctors at the hospital a couple of times about this and they all just tell me that im constipated, ive argued that im not but no-one seems to listen to me and now im freaking out about the amount of blood yesterday. I can't help but wonder that this is the cause of all my pain but then i became ill in june and i didnt start bleeding til Auagust?
Sorry, im ranting again. I'm seeing my GP on thursday again so i'll tell him.

[pinkmada]

Went to my doctors today, i have a CT scan a week tomorrow but he's not happy with what the doctor said at the hospital. He also prescribed me with amitriptyline as a slow releasing sedative so i can get a good nights sleep. I'm so fed up with this.