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Old 01-02-2007, 01:11 PM   #1
rachelpass
Junior Member
(female)
 
Join Date: Sep 2004
Posts: 41
Unhappy Autonomic Nervous System disorder or something else? PLEASE HELP ME...

Hi all i have the following symptoms, and i don't know what they could be, can anyone here help me figure this out. My doctor as well as the neurologist and the cardiologist are stumped.. see list below.. if i went into detail it would be a book, so i am just listing the list of symptoms

Amy's Symptoms:
Eye Twitching
slurred speech/stuttering
leg and arm neuropathy
palpitations
fatigue
short of breath
gait abnormalities
arm swing disfunction
dizziness
syncope
light headed
high blood pressure
supine low blood pressure
vasovagal syncope
blurry vision
frequent bowelmovements right after meals
low B12, treated with injections monthly

Any one have any idea of what may be going on? i would appreciate any and all input. current medications: benazapril, allegra 180, nasonex, klonopin 1/2 tablet every other day
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Old 01-03-2007, 09:49 AM   #2
feelbad
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Posts: 8,947
Re: Autonomic Nervous System disorder or something else? PLEASE HELP ME...

A possible dysfunction could be likely considering your ongoing symptoms.but you also could have something that is actually triggering the symptoms such as a problem within the c spine which can also affect the sympathetic nervous system.the sympathetic ganglion which controls the SNS is actually located within the front,kinda to the side slightly,in your L neck.the sympathetic chain tho actually runs down along both sides(on the outside) of the spinal column as well.I have SNS damage that was caused by a spinal cord sugery that just really messed up alot of things.

what types of actual testing have you had done?any MRI on the c spine area at all?anything on the brain as well?if you could just let me know that part,it would really help alot in order to give you the best possible advice.what exactly have you been told by the specialists you have been seeing regarding the actual symptoms?thanks,FB
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.
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Old 01-03-2007, 07:41 PM   #3
rachelpass
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Join Date: Sep 2004
Posts: 41
Re: Autonomic Nervous System disorder or something else? PLEASE HELP ME...

hi i had mri on cspine and lspine due to motor vehicle accident in 2005 it showed disk buldge and early degeneration... doctors now saying parkinsons a possibility due to skin biopsy results..i am only 28 though.. he put me on sinemet now too.. thanks for response..
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Old 01-04-2007, 09:36 AM   #4
feelbad
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Join Date: Dec 2003
Posts: 8,947
Re: Autonomic Nervous System disorder or something else? PLEASE HELP ME...

parkingsons? that really doesn't fit with your actual full range of symptoms to me.have you actually gotten any sort of second opinion?your symptoms do appear to fit with some level of sympathetic affectation and possible para sympathetic too.i really would obtain a second opinion from an actual neurosurgeon and not another neurologist.Just where exactly IS that disc bulge located?do you have a copy of your MRI results in your posession?if not,get one and read thru it for yourself.most docs are notorious for not telling you everything includued in any given rad report,only what THEY feel is pertinent to your situation,trust me on that one.

i DO think seeing an actual neurosurgeon tho vs yet another neurologist would be in your best interest at this point.they just have so much more real knowledge of the innerworkings of the c spine and the brain and the crainial nerves and the SNS and how many differnet ways it can actually be affected.even a problem within your chest cavity can affect that specific nerve that can cause SNS problems.see an NS soon,really.i seriously don't think,just looking at the symptoms you have stated here that parkingsons is realistically what you actually have.it sounds more like this doc was looking for a diagnosois rather than actually finding the real source of your symptoms to me.seriously,you should not have to be on any actual meds that you really do not even need.have you felt ANY changes in your symptoms at all since you started this med?

taking your report and those films(very very important)to a good neurosurgeon for his opinion would honestly be what i would do if this were me,really.it honestly sounds to me,just from my experience with my SNS malfunction that you DO indeed have some level of autonomic dysfunction to both the symp and the para, possibly.this is what your actual symptoms would look like.also a real good neurosurgeon will do his own read and interpretation of your films.my NS barely even glances at the reports i bring in and prefers to just look at what the films are telling him.any actual rad report is only as good as the radiologists overall experience and knowledge actually is.this i really DO know after having 16 MRIs done over just the past four years.

i really think the parkingson Dx is way off and just a quick way for the doc to place a label on you and move on.see that NS,soon.you do deserve a real,true dx from a doc who knows what the heck they are actually doing.did you actually ask this neurologist just why he believes you actually have parkingsons?if not,do some actual research on what parkingsons really is,all the signs and symptoms,just educate yourself well on this,and then go have an in depth chit chat with this neuologist and have him explain his reasoning to you.if you already know what parkingsons is all about,you will do really well in this little conversation and be able to counter some crap that he is trying to make you believe about your condition.this dx just doesn't sound right at all to me.

good luck and please keep me posted,K? FB
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.
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Old 01-05-2007, 05:19 PM   #5
rachelpass
Junior Member
(female)
 
Join Date: Sep 2004
Posts: 41
Re: Autonomic Nervous System disorder or something else? PLEASE HELP ME...

Hi Feelbad thanks so much for your indepth reply i really appreciate it... I do have the MRIs in hand and they said something about C7/C8 focul buldge and the other is at L5/S1 central buldge with degeneration...

Also i just got the Epidermal Nerve Biopsy report, where they took a skin biopsy of my thigh and calf. Here is what the results say:
A. Calf: Skin with significantly reduced epidermal nerve fiber density, consistent with small fiber neuropathy.
B. Thigh: Skin with significantly reduced epidermal nerve fiber density, consistant with small fiber neuropathy..

Result values
Calf: 3.54
Thigh: 5.39

Also the doctors office called me and now wants me to be seen by the Neurogenetics Doctor.. So i am to see her next on the 22nd.. They did not say why...

Do you think that the car accident that i was in in March of 05 or the Epidural Lumbar Injections i received could have caused all of this? I also went to a chiropractor and had treatment of my back and neck for about 1 year after the accident..

All info is appreciated..
Thanks so much Keep in touch
amy
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