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Originally Posted by Ronnied
Morning Chell,
Went to Dermatologist yesterday, skin not being affected by the dmards, so next week going back on them. Leflunomide probably, appt with rheumy on Monday. Decided to take up guitar lessons!!!!!! probably wont last long, but thought it would be something to take my mind of problems. Don't even know if I can do it with my hands, but going this afternoon for first lesson (probably last as well!!!). Got a lovely Pink! electric guitar bought for me at Christmas, so got to give it a go, more than likely end up for sale!!
Hope you are ok, and got on ok at Dermatologists yesterday. How are they treating your ulcers? What is causing them? Do you have a flare up of psoriassis at moment or is it separate thing? What dmards are you taking?
Do you have any hobbies? Can you do them at the mo? We are all a bit limited with arthritis as to what we can do.
Is mcjonval on line? How is your Husband? What does he do to take his mind of things? What drugs is he taking. Interested to hear from others with psoriatic arthritis.
Ronnie xx  |
Glad your skin isnt affected by the meds, I saw the dermatologist yday and Im going into hospital early tomorrow morning(thursday) and hes doing some skin biopsies of the newest ulcers there tiny red dots when they start so hes doing one of them and maybe more and hes running a few more blood tests and Im being retested for lupus (ive had 4 negative ones so im not worried)
Ive only two patches of psoriasis and ive a bit on my scalp but the thing im seeing the dermatologist about isnt psoriasis as its not related what I have is about 20 small ulcers all over me on my legs, chest back,bum and my boob and new ones are starting all the time, there little cm red things which look pitted with a kind of punched in centre, theyre unusual, they think it could be vasculitic ulcers(due to vasculitis) or another weird connective tissue disorder which people with autoimmune diseases often experience, or it may be some funny infection due to my immune system being suppressed so the biopsies will be to rule certain things out and may diagnose the problem but im aware it may not give us the answer but itll rule a few things out
Hobbies oh how depressing well I used play about everything i could: basketball, soccer, badminton, gymnastics ,swiming life saving courses,camogie and gaelic football (irish sports) was in scouts, loved kayacking,
but I dont really do any of them now, i went kayacking a few times during the summer but was very painful afterwards, I was just back swiming after one lot of surgery then since i got all these ulcers well I cant go right now which is really hard as I love being in the pool and swiming I do physio excersises 2 or 3 times daily and do pilates
They are treating the ulcers at the moment by cleaning them with sterile saline,then drying them a bit then out a cream called polyfax into the ulcer the cover it with a betadine dressing then another meopore dressing(the white ones with sticky stuff on them) it takes a minimum of 30minutes to get them all done, which is annoying
The DMARDS im on are
arava same as you (leflunomide) or however its spelt.
considering TNF meds but not until all ulcers wounds infections etc well gone , Im seeing my rheumy on Monday at 12
Who bought you the pink guitar?? well its worth a shot anyway otherwise youd never know until you try if you can do it or not.
Have you been back at work yet?
Do you see all your doctors in the hospital through the NHS?? if you dont mind me asking, or do you see them privately and have health insurance??
I have health insurance and have to see all my consultants privately in their rooms so I pay from 70 to 200 euros depending on which consultant im seeing and ive to pay for all my out patient cts and mris xrays etc, if im an inpatient then my health insurance covers it. I think tomorrow Im covered though as my insurance has an agreement with private hospitals to cover some procedures,
I used also have to pay 50 euro a visit to my gp and 85 euro a month on medications (once it went over 85 euro theres a scheme which the government pay the rest of the cost) but now as Im over 18 and am chronically ill mty gp and social welfare officer made a case and I was granted a medical card so I no longer have to pay to see my gp or the nurse or for my prescriptions which does help but Ive still a lot of medical expenses. The NHS is a great set up compared to here my best friend is in college in bedford and he cant believe the differences and how much better it is than here
Talk to you later
Re: psoriatic arthritis
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