Nixi,
I am glad you are getting more tests. I hope you find out answers soon.
I'm relieved that I dx as soon as I did with MS. Not that I want MS but I didn't get left out for years while things got worse. I just started having MS pains, the tightness in my upper thighs. It makes it hard to walk or drive just a short distance. The most discomfort right now is from Avonex. It gives me flu like symptoms. It like me having the flu every Monday. Hopefully, my body will adjust and the symptoms fade in a month or two.
I just had another MRI to check for progression. My right leg a couple weeks ago didn't want to move. I really had to concentrate on it to get it to move and I was dragging it. And with it the double vision occurs. My neuro is concern that I am getting worse (weaker) even with treatment.
Yes, I still have fibro. I have all the tender points and other problems. I deal with TMJ. I still wear a splint at night. ME/CFS. How do I tell the fatigue from that and MS. I don't know. All these symptoms cross over. I just know that when I try to exercise, I go into an anerobic state very quickly. My pulse rate is above my maximum target rate. Doctors or people will say it is from deconditioning but I exercised (lightly) for six months and suffered for doing it. My heart rate still was anerobic just from a warm-up. I should have been conditioned in 6 months.
Thank you for concern.
Lots of hugs back to you,
Bunni