I have recently been diagnosed with Addisons - Page 2

making777 · 06-04-2007, 04:26 PM

Diane,

Yes, we understand how you feel. Many of us feel the same way. I am glad that you are now diagnosed and are on the way to feeling better.

Did you get much teaching about AD from your endo? One thing I noticed is that there seems to be little teaching regarding how to live daily. I did a lot of research on the internet, and am feeling a lot better, now that I have hit my balancing point and seem to be staying there!

Did they tell you that AD is a salt wasting disease, and that you need to up your salt intake? I have a cup of chicken broth every morning to start off right, and it helps quite a bit. If I forget, I find myself in a mental fog at some point in the day, then I remember that I forgot my broth. Some people take Florinef to help with the sodium absorbtion. Has your endo prescribed it for you?

I hope you find this place to be a nice refuge for you. I only know of one other site like this, and I am thiankful for both! Both have been enlightening and encouraging for me.

Blessings to you, and I hope you are on the mend now,
MaryAnn

BTW - I have had the official diagnosis of Adrenal Insufficiency for about 10 months now.

Diane44 · 06-04-2007, 04:43 PM

Chris,
I don't mind you asking. Do you have AD too? How long if so?

I have been adjusting the dosage a bit. I have a great Endo and she is so helpful. I started out with 25mg and gained about 20lbs. Dropped to 20mg and then dropped a bit more to see how it went, I now take 10mg at 5:45AM and another 7.5mg at 2:30 to 3:00 PM. This seems to be working well for me and I stopped gaining weight. I also had my Flouronef dosage changed at my last appt. due to test results, I now take .1 and then another half of that. I am feeling really good now so maybe that is the ticket?

Diane44 · 06-04-2007, 04:59 PM

I have a wonderful Endo. She has helped me so much and is now leaving and moving to Washington State. Lucky them! She did tell me about the salt and I do eat extra each day. I found that I was so thirsty all the time even after diagnosis and have a water bottle attached to my hip. I don't go anywhere without it, I can't. I have always been a big water drinker but this is extreme. I find that taking in more salt curbs that a little. She has talked to me about many things and always takes as much time as I need to talk to her at my appts. I am gong to miss her!

I do wonder about daily living though and running out of energy by exercising, or if I miss a dose of Cortef what will happen to me? TI did it once so now I don't worry so much about it and I don't do it. I was out that evening trying to power walk and I kept feeling funny. I went home drank more water, stretched again and attempted another mile. I still felt funny so I came home and rested. Next day at work, I noticed my pill still in the Tueday box. Then I knew why I wasn't feeling right. I don't know if exercising is going to give me more energy like it used to or use up my medication so I have less? So far I haven't found that it is using it all up but I have not gone overboard either. The Dr. thought it would be ok unless I was running a marathon or excessive workouts.

I am sorry I am getting carried away here!
I am so happy to have found this site.

Quote:

Originally Posted by making777

Diane,

Yes, we understand how you feel. Many of us feel the same way. I am glad that you are now diagnosed and are on the way to feeling better.

Did you get much teaching about AD from your endo? One thing I noticed is that there seems to be little teaching regarding how to live daily. I did a lot of research on the internet, and am feeling a lot better, now that I have hit my balancing point and seem to be staying there!

Did they tell you that AD is a salt wasting disease, and that you need to up your salt intake? I have a cup of chicken broth every morning to start off right, and it helps quite a bit. If I forget, I find myself in a mental fog at some point in the day, then I remember that I forgot my broth. Some people take Florinef to help with the sodium absorbtion. Has your endo prescribed it for you?

I hope you find this place to be a nice refuge for you. I only know of one other site like this, and I am thiankful for both! Both have been enlightening and encouraging for me.

Blessings to you, and I hope you are on the mend now,
MaryAnn

BTW - I have had the official diagnosis of Adrenal Insufficiency for about 10 months now.

Diane44 · 06-04-2007, 05:04 PM

Hey I just noticed you are in Washington State. I am getting used to this yet. Maybe you will get to see the Endo I have here now. She is awesome!

making777 · 06-04-2007, 06:13 PM

Where is she moving? I am quite intrigued! I like my endo pretty well, but I am not partial. It took her a while to take me seriously, but I am glad that she does now. I live in Gig Harbor, close to Tacoma, 1 hour out of Seattle. I am sorry that you will have to be without her. I hope she can recommend
someone that you like!

I'm glad you are doing better and are exercising. I am just now getting back to exercising, after 3 years of being too exhausted to attempt it. I feel great now, but I am gaining weight due to the meds, and that makes me nervous!

Have a wonderful day!
MaryAnn