Hello again Chulupa...
Your thyroid levels seem more than efficient, but how is your T3 doing? (Do they ever test that one?) It looks like your FT4 just went over the top...is that right? What is the top of your range there? If 1.8 is the TOP of your range, I'm just wondering if she might have [been better] to have reduced your dose only by .12, instead of .25? Maybe you might want to ask that over on the thyroid board. But one thing too, for sure, if your levels are too high, that too can make your AR worse. (I once went hyper, and my acid was the worst!, and my endo said that was a telltale sigh)
Wow Chululpa, it sure does sound like they have covered pretty much everything at this point, huh? Do you have other digestive symptoms, besides the AR? Have you ever tried using some Malloxx [or such], for a week or two, to see how it would help you if you "coat" your stomach lining? I did do that once, and found that my pain went almost all away. I didn't really like using it, but I thought what can it hurt, for a week or two? (They prescribed it to my dad [when he was about 75], as he had had a burning pain in the pit of his stomach [for over a year too...so that's why I tried it,..it worked for him so maybe...].
He was one man to never complain about his aches and pains, but he told me this was killing him. I begged him to let me take him to the Dr., [as he was a man who would never want to go to one], as he was staying here visiting me....so he did let me take him to the Dr. Well, believe it or not, that pain went away in 1 week, after he gave it a try, and what was so amazing was, it never came back. (I had read somewhere, once, that sometimes that stuff can heal ulcers, for some people) So I tried it too last year, when my stomach [AR] was killing me. I really was surprised at the [great] relief! I didn't just use it now & then tho, I used it like 3 x daily for a couple of weeks. I don't know what my dad's problem was, [they never ran any tests, they just told him, 'if it's not better in a couple of weeks, come back...'], but his pain never did come back. I don't think it was AR, as he didn't have those type of symptoms, but he just held his hand over his stomach and said "it just burns right here, real bad, constantly".
I can [honestly] see, Chalupa, why you wouldn't want to get pregnant right now...you have enough problems with that pain to want to go through all of that....being pregnant is hard enough, isn't it? Your Dr's sound great, as far as covering all bases...geez, I don't know what to say. DO YOU think it is solely acid reflux? (Did you say too that you also had a HH? I think you did?)
Chalupa,...I tried that Celebrex too a couple of years ago, and I tell ya, it was great for any pains I had...they all went away, (I was just starting thyroid meds, and had so much pain, and all of my knuckles were killing me) but I couldn't BREATHE when I took that stuff! Honestly,...it scared me so bad...so I quit taking it, of course, right away. I found [another] board, where people were talking about taking that drug, [and good and bad side effects] and found a few others who said they couldn't breathe on that drug as well! I was upset, because it sure did help the pain. I was already short of breath, but it made it so worse.
Chalupa...what are your Dr's saying to explain your weight loss...that would really have me the most concerned? (Do you think it's your high T4 levels?) Are you still losing?
Just curious, chalupa, about your throat symptoms? What does that feel like? I had a feeling of tightness in my throat...like it was closing up? It felt so scary. Even my neck muscles, [on the outside] would spasm and get tight feeling....scary.
Well, I better go,...I just want to say, don't give up...stay in touch, and keep on searching. Let's hope you will feel a lot better with this reduction in your
T4 dose. I do remember my endo doc saying that, [about sure sign of hyper was AR], so let's hope. But please, if you haven't got your Free T 3 level checked yet, please try to do so,...I started really healing and getting well with the addition of Cytomel. And maybe try that Malloxx....just to see what happens.
Have a great holiday...as much as you are able to, and God bless...
Deda