any ED experiences out there ?

[GBINAB]

Originally Posted by Lilacs&Lillies

My husband's uro said things were in his favor because his function was so good before surgery and everything went well during surgery as far as sparing the nerves:--- but reminded us that there are no promises. No two men are alike and even when things go perfectly with surgery - some men stuggle, so it was advised to be 'cautiously optimistic.' < Which was just about right for us. No false hope, but no doom & gloom.

My husband (51 at the time of surgery) was discouraged with ED for several months after his RRP. Reading of another man's return of function was encouraging to him in the beginning - until he didn't meet those same timelines. Then it just made him feel worse. Likewise, reading posts where no return was ever achieved was discouraging as well.

I had to remind him that the body will heal at it's own pace, so it's hard to compare notes. The only experience you are guaranteed to have is your own.

My husband finally started seeing some results around the 8-9 month mark and is happy to be functional again. He's not back 100%, but we didn't expect that. I hope you continue to progress.

Best wishes,
L&L

that is great to hear L&L i am happy for you and hubby and i am sure he will get to be 100% again since he is on the right path... Good Luck and thanks for your comment it is all encouraging ... GB

[Holly387]

Originally Posted by GBINAB

Hi everyone ,

I been away and now back to the board.

I hope everyone is doing well, and i wanted to share some thoughts and experiences on the ED front , we post PC treatment patiens experiencing.

I am almost 4 months post Open Surgery , and been doing really well with continence since the first month, but ED is moving slow.

I visited my Uro/ Surgen just last month; PSA is great , and he was hoping i am already functioning sexually, since he advised me that the operation went great and was clean cut as he expected , without much blood lose , and was a full Bi Laterat nerve sparing procedure.

I told him i am not yet at full functioning or full erations, and he reassured me that i will have a good and healthy sexuall functioning.

As i have said i am now 4 months post OP and i do see some slow progress and improvement, especiall after using 1/2 a dose of 100mg viarga (compare to the others like Cialis and levitra).
Sensetion and partial eration is there at this time, and about 80% eration after orgasms when masterbating (i guess it means that nerves and blood flow is there).

I wanted to post this to share and read some other experiences out there of those who have been or still is down that road, and learn about the road ahead of me and others like me...

Even though i have heard that 6 months is kind of the time frame to start and see some progress in the ED front, i would appriciate any responses and comments.

Again i hope everyone is doing well , and thanks for your helpful input.

PS: Debbie , Great rweading your post and i am happy Hubby is pogressing well !! i recall the stress you 2 been through at first !! Keep up the good work!!!!

Thanks GB! It's been a tough road emotionally for me but things are getting much better. My husband is doing great. And, we are better together. On the down side, my father in law is getting much worse very quickly from the PC. That was/is a big part of our stress while dealing with our own case of it. Seeing how awful that is... how painful... at late stages, would make everyone here more accepting of the effects of treatment and more grateful for their health! It is so sad that we lose sight of that part some times because of the side effects of treatment.

Glad to hear you are doing well. Sounds like your progress is good. Keep the faith! I'm not the best with patience but you are showing signs that the nerves are working so its only a matter of time. YEAH for you!

One thing I'd recommend for healing of nerves is vitamin B6 and B12. They worked for me (nerve damage from knee surgery) and are specific for nerve repair. Hubby is taking them also.

Debbie

[able5]

debbie;

Did your father-in-law have regular PSA tests after age 50?

How did he find out he had prostate cancer?

My dad died of prostate cancer. That was back in 1981 when he was 68 years old. Back then they had no screening method like we do today. His first symptoms were problems with BM's at about age 65. He went to our family doctor and had a DRE which found found sizable nodules on his prostate. He was immediately referred to a urologist for further evaluation. By that time the cancer was outside the capsule and had already spread. It was too late.

How did your father-in-law get in such bad shape?

[Holly387]

Hi Able,

Yes, he did have tests regularly. Had his prostate removed 15 years ago. Had no incontinence but never recovered from ED. 5 years later, PSA started to rise. Treatment started. Radiation, hormonal, testicles removed, etc. Lots and lots of things have been done. Unfortunately, this disease has got the best of him. He has been under care for 15 years, with tests and treatment. After surgery, he sounded like everyone here. It is scary, which is why I had such a difficult time when we got our prognosis. We don't know, any of us, what life holds. We believe he had positive margins, which is why I feel that treatment after surgery with that is a must. My opinion I know, but I've seen what can happen and it is ugly.

Like I said, this hasn't made our journey as hopeful as I would like.

Debbie

[Holly387]

I should add... we had negative margins, PC contained, PSA is zero, and everything looks positive for us. I just have to start living that way. That is tough for us right now given the situation. I want that!