When she is having fits, her head will tilt to her right side, her right arm will jerk straight and twist, and her tongue will thrust out to the right. All this happen very fast at split second, and she will be temporary dazed and need a few second to recover. We managed to video taped an episode and the neuro confirmed it is a fit.
Now, her head tilts and arm twisting have more or less tapered down. But her tongue still sticks out very frequently. She could be doing something, like eating her cereal happily, and suddenly her tongue will stick out causing all her cereal that is in her mouth to drip out. Or she could be babbling happily, and then stopped suddenly and her tongue will stick out. Does not appear normal to us. Is it the same for your niece and nephew? Do they suddenly thrust their tongue in the midst of doing something?