Something in my belly hurts {sigh}

Kaybug56 · 11-09-2007, 01:23 PM

Something in there has hurt for 2 wks.
Since I can't tell what was hurting c7,
(paralized chest down)
I thought it was my belly, like acid, ulcers, etc.

Then I got real ill, fever, passing out.

Went to ER & had 2 uti's.
So I said maybe that was the pain, not acid.
Maybe the 2 uti's was making my belly hurt.
It did ease up while on antibiotics.

{hurting and confused}

Took 10 day round of leviquin & 7 days of microbid.

My belly, bladder something in there STILL HURTS. EVEN WORSE!

At the same time My Family Physician ran blood work.
That was all good too! Everything fine!

I'm making an appt. to test my urine again.
Do you think the UTI is what's hurting?

Or there's something else hurting I need to investigate?

Thanks Kay

feelbad · 11-09-2007, 11:39 PM

just a bit of confusion here.could you explain the extent of your SCI(i too am a c7 but incomplete)?i am assuming since paralyzation has occured from the chest on down,you are complete injury?i am just wondering how you are actually "feeling' anything in the belly from a complete in the c 7 area?i do know that whatever your cord level damage is,that you can still have intact motor and sensory(depending on type of injury)that can innervate up to two full levels below injury in some cases.it just depnds ona few different factors.when you say the belly,just where IS the pain located at exactly?like i said,i am just a bit confused if this is indeed IN the abdominal area with a complete injury plus para.could you give a bit more detail of the extent of injury and your symptoms(just what does this "pain' feel like to you?) and just what type/perception of sensory and motor you still retain below level of injury?it would help alot.thanks, FB

Kaybug56 · 11-10-2007, 03:40 PM

Quote:

Originally Posted by feelbad

just a bit of confusion here.could you explain the extent of your SCI(i too am a c7 but incomplete)?i am assuming since paralyzation has occured from the chest on down,you are complete injury?i am just wondering how you are actually "feeling' anything in the belly from a complete in the c 7 area?i do know that whatever your cord level damage is,that you can still have intact motor and sensory(depending on type of injury)that can innervate up to two full levels below injury in some cases.it just depnds ona few different factors.when you say the belly,just where IS the pain located at exactly?like i said,i am just a bit confused if this is indeed IN the abdominal area with a complete injury plus para.could you give a bit more detail of the extent of injury and your symptoms(just what does this "pain' feel like to you?) and just what type/perception of sensory and motor you still retain below level of injury?it would help alot.thanks, FB

Hi FB, thanks for answering.

I was told complete and incomplete. I really don't know.
I can use my arms. Which is triplegic-tetraplegic?
I've heard it called both.
I have biceps & triceps on my right arm.
Biceps only on my left arm.
I can feel something in my legs when they are moved.
Like muscle. I can't feel my skin touched.
Hope that helps.

Back to my belly.
I can't tell where it hurts.
I just feel sick in it.
Like it's hurting & I want to throw up.
Which I can't do.

Wednesday I finished the levaquin & microbid for the 2 uti's:

pseudomonas aeruginosa enterococcus faccalis

By Thursday I was right back sick exactly the same.
Friday I went to the Urologist and dropped off another urine sample.
I was too sick to wait on the culture though,
so he put me on Cipro twice a day.

Now my belly is better.

feelbad · 11-12-2007, 11:12 AM

sorry for your situation.it does appear you may be an incomplete here since you DO have sensation below your level of injury.completes will not be able to feel anything at all in their legs if there injury is in the upper torso,every connection is pretty much cut.who do you see for ongoing care?you really DO need to find out just what exactly has been injured in your body and the extent of damage.a good physiatrist would be able to really help with that.this is a really knowledgable(with sci) physical medicine doc.mine knew exactly what my level of SCI was based on what was and was not working anymore and my sense of touch or sensation below my level of injury.there are certain syndromes too that SCIs can get that can create different types of just insane feelings and perceptions too.it is the 'perceptionary pain/sensation"that could be responsible for your ongoing pain,really.the biggest thing i found after my cord was injured is that i started actually 'feeling or percieving' really strange pains and sensations.these are very different than the radiculopathic types of pain and sensation that you would get with like a herniated disc impinging a nerve root or something.unfortunetly i have both and can always pretty much tell with me,just what particular pain or sensation is stemming from the cord injury or my c spine mess.

you could very well be experiencing true pain but there may not be an actual 'cause' like from an infection or other type of injury?it could be the "perception' of the pain stemming from your cord injury.sounds really crazy but this is just what can occur with cord injury.this is what you need to identify.there are certain anti siezure type meds that you could try just to see if this pain may get better on its own.the big thing with SCI is you can have that perception of pain but it really isn't stemming from an actual 'thing"?you just 'feel' it.it really does feel insane.i call them 'painsations'.

but you really DO need to find out for certain just what you actually have lost and what is still there.seeing a knowledgable neurosurgeon who specializes in SCI or the type of doc i mentioned above,personally i would start with the physiatrist.they just really know nerves and muscles and connections.mine is who Dxd my level of injury while i was in acute rehab post SCI.obtaining an EMG with a nerve conduction study would REALLY benefit you in your current situation too.

if the cipro actually helped,you may be rid of this.it could have been an infection type that would only respond to the type of anti B that is cipro.it is a bit different than other types of standard anti Bs.i had this once post op for my knee.i was told that i specifically needed cipro for this and not any other type of anti B.so i know it does something a bit differently than the others like the cillins?

but regauardless of the outcome of that pain,you really DO need to get your level of actual sci evaluated and documented.what caused your sci in the first place and just what level of your c spine was it at?do you have no actual fine motor at all anymore in your hands?please let me know how you are doing,K?but seek out a true level of overall injury(loss and what you still have as far as nerve function to the lower areas)Dx.you just have to know this. FB