Daughter back to testing for Addisons, any advice?

[gettin' better]

I had the shorter tests first, and they were "normal". The longer one was administered in the hospital. I do not have primary Addison's, but have complete pituitary failure, which means I have secondary Addison's, hypothyroid, and growth hormone deficiency. I take meds for all of those things and am doing quite well now. Good luck with getting your diagnosis.

[Jencg]

Originally Posted by gettin' better

I had the shorter tests first, and they were "normal". The longer one was administered in the hospital. I do not have primary Addison's, but have complete pituitary failure, which means I have secondary Addison's, hypothyroid, and growth hormone deficiency. I take meds for all of those things and am doing quite well now. Good luck with getting your diagnosis.

Thanks for your reply. Can I ask what meds you are taking? My doctor suggested hydrocortisone and fludrocortisone for me but I requested a second test before making the decision.

[gettin' better]

I take 15 mg. of Cortef, but not Florinef. I take Synthroid for my thyroid, and human growth hormone by injection.

[tamiam]

I, too, had all the symptoms (passing out, fatigue, weight loss, low blood solium, high blood potassium, etc) but normal ACTH stimulation test so I was sent back to the family dr. Nine months later I tested low for aldosterone (cortisol was still normal) so my dr. started me on prednisone and Florinef. So, don't give up-- sometimes the symptoms appear long before the lab tests show Addison's.