My 4 Year old May have CROHNS--anyone else have experience with such a young child?

[Kel123]

Juujuubug,

I hope your appt goes well. My doctor also tested for celiac disease (wheat and gluten allergy) We also had her allergy tested and found out that she is allergic to eggs. How long until the medication showed some improvement? I think my daughter is feeling better. I think she has a high tolerance to pain because she is so used to her tummy hurting all the time. The bloody diarhea has subsided, and she is going much less than before. Is your daughter in remission now? when she reaches remission, will she still have to be on medication to keep in remission? These are some of the questions I have. It is hard to keep on top of medicating her three times a day. I feel like I am always giving her something. Thanks for all the information. I feel so alone in this. My daughter is so young at 4 years old to have this that I worry about the long term effects with her. I am sure that 12 years old is a very difficult time to be diagnosed as well. Independence and pre-teen problems are hard enough without having to restructure your life around a chronic illness. I am glad that I found you and we can relate. Thanks again.

Kelley

[juujuubug]

Kel

The appointment went good other then him having to give her meds. to sleeep cause she can't sleep at all there are times she is up until 4:00am .We don't go back until june so thats good we were going every4 weeks then 3 month as for is she in remission i think so like you i am still learning about this disease but i think i am figuring it out because when i read that they would have flare ups i had no idea if i would know but believe me you will now when she is having 1. So are they for sure that your daughter has crohns? If so what meds is she on my daaughter takes nexium for 1 week then prevacid the next week she can't stay on 1 all the time causeit does not work for her she takes asacol 2 tablets 3 times a day ,methscopolamine 2 tablets twice a day and at the beginning she was onpredinsone for only 10 days thank goodness i am also glaad that i have found someone we a child will this take care andkeep me posted.

[Kel123]

Hi Juujuubug,

Well it sounds like her crohns is under control..that is good. My daughter is on metronidazol 3 times daily and azulfidine 3 times daily. She takes the liquid compounded form because she is so little. She definitly seems better after starting the medication. She is not stooling as much, and she is complaining very little about her tummy hurting now. I am relieved. Steroids are next if her bloodwork comes back bad on Tuesday. She definitly has IBD, thay are still sorting everything out now. Her bloodwork looked like more of an ulcerative colitis pattern, but her biopsies, upper GI, colonoscopy and endoscopy along with her clinical picture and the mouth sores she gets all look like crohns. She is being treated for crohns now. We have another appt Tuesday afternoon so I will know more then. I hope your daughter gets some much needed rest and stays in remission. Take care
Kelley