Hello all. Ive finally found people who have some knowledge of the use of
baclofen..I was put on oral
baclofen last year for a muscle spasm in my face. i had an ear pain which then resulted in my face and tongue going into spasm..i have a history of tight muscles in my back and a torticollis and the ear pain caused everything to clench so was put on
baclofen to relieve the spasm in my face. i was prescribed 30mg but on just taking 20mg my arms started burning so i reduced my dosage to 5mg to stop the burning. When i went to see my regular neurologist he just told me to come off
baclofen cold turkey as it was only 5mg and that i would be fine.....well i wasnt
I began violently retching three days later after only using
baclofen for two weeks and eventually after two weeks they decided to reinstate and wean me off(I think 2 weeks was just too late)...When i was put back on the
baclofen at 5mg someone opened the doors of hell and pushed me in.I came off again on the 1st August 2007 and suffered horrendously again for the first week.
I suffered from hallucinations, violent retching, a feeling of my intestines swinging from side to side ,extreme nausea like you would not imagine..you have to live it to believe it, menstrual bleeding for 40 ..yes 40 days!! muscle rigidness and spasms, sharp shooting nerve pains, retching, couldnt sit in the bath without the sensation on my skin making me heave woosiness, giddiness, a feeling of swinging from a hammock, thoughts of impending doom..basically i thought I was going to die and wrote a goodbye letter to my family, severe headaches, gastro intestinal problems and a loooong list of other withdrawal symptoms. I have been diagnosed with central nervous system malfunction caused by oral
baclofen and the assumption that I should improve over time.
Anyway im actually looking for help here of someone who has experienced the same as me. At the moment Im 5 months off
baclofen and still unable to work. My normal muscle tone has not returned and I get spasms of pain instead. i get a buzzing inside me and inner vibration.I am nauseus every morning and have an inner feeling of rotation. Doctors have been really unhelpful and have just let me get on with it. Im on half pay at the moment and in 4 months time im on nothing..This has been a tall price to pay for a muscle spasm...i went to the docs with 1 problem and got 30 back in return.
Is there anyone who is able to tell me why im still suffering and if i will eventually recover...please bear in mind that I am still rather frightened that i will be like this for life now. I know people on benzos take between 6 and 18 months to recover. Is it the same as
baclofen. Im still going through so many problems including gastro-intestinal. i always have a window of well being after 6pm but the rest of the time is just spent dealing with my symptoms...i get all sorts of strange sensations inside me. The docs are trying to cover up. I was normal before this happened and working as a full time teacher. Now my life seems to be just dealing with symptoms and all because i took
baclofen for just 2 weeks and came off just 5mg. Someone must have experienced something similar even if its for a short amount of time. Im 5 months off taking
baclofen. please help.
.) I find it's a prn kind of drug for me and my PM agrees with how I've been using it. I have not had any kind of reaction like this. If anything, it does make me sleepy, so I don't take it during the day if I can make it without. I'm really wondering if you have something else going on. Are you able to seek another opinion? My understanding of 
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