Hi all, new to the site. Was diagnosed with Graves 3 years ago and have been "normal" range for about 18 months. I went through all the variations of Tapazole dosage from hyper to hypo back up again until we figured 10mg a day would work. That's where I've been for almost 2 years. My bilirubin total has been elevated for a long time (side effect of tapazole i am told), so last labs endo decreased me to 5 mg. Labs last week showed no change in bilirubin (4.2) and .2-1.2 being normal range, so he wants me off meds for 6 weeks to check remission status. He was to do RAI, I say no, since I have the TED/GED (not sure of proper name now) and that would mean high doses of Prednisone for months. My T-4 Free is 1.2 (middle normal) and TSH, 3rd Gen is 2.51 (middle normal), but I really feel lousy and have for months. I am tired and irritable, always feeling buzzy, achy and extremely emotional. My eyes are ugly, but stabile for now. I do get headaches a lot and just tired of being tired.
The worst is my concentration is awful. I have a high-concentration job, which I struggle to do now..and sleeping doesn't happen for me.
Does it sound like anyone else out there? I am so worried that when I do my next labs my bilirubin will still be high or I will be hyper again and he won't want me on tapazole. Are my only 2 options Tapazole or radiation? My endo isn't the friendliest of the bunch, not sure if i need a new one after all these years.
Just would like feedback, my husband think i just complain too much, i don't think anyone really understands unless you are also living it.
Thanks for the input, I appreciate it.
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