Hello I am new to this board

[Jancie52]

Hello all This is my first time posting although I have been visiting this board the past few days reading. I Have been diagnosed with LPR and am having a awful time. Let me give u a short version. I had a egd on the 16th of Jan. and i have been like this ever since. I had the upper GI, modified swallow and one more swallow before the test. The Dr told my husband i have irritation and to take nexium and prilosec, he knew i could not get the nexium due to insurance. And to follow up with ent. anyway , My stomach bloated way up feeling like i could not breath and i had all this liquid in my throat feel like it was choking me. I was in a panic. My husband took me to ER they took cat scan of my throat, gave me some reglan and some lorzapam, he thought my esph. was spasming and to continue on prilsec OTC. I struggled with the choking, lump in throat, liquid in throat, coughing,hacking,clearing my throat so much I just wanted to die...I went to ent he said i have lpr after putting tube down my nose. he said to take 80 mg a day of prilosec and buy some mucinex. The mucinex I can't swallow it is too big, I took the prilsec two in morning and two in evening. I felt 50 percent better except my stomach bloats so bad. I got so sick one day so weak, felt like i couldn't breath, my throat filled up with the stuff . Called dr and he said pick up some samples of acpihex. They do nothing for me it is all starting back with no relief. I went back on the prilesec. At least I got some relief from that. I go to the GI Dr tomorrow. Hoping he can help me I am a wits end. What a life, The ent said no to the lorzapam cause it is just a band aid but it is the only thing that helps when it gets super bad...I don't know how you all have coped with all this, do you have any advise for me? What kind of food should i eat cause i haven't been able to tolerate anything but plain yogurt, chicken broth and oatmeal....Sorry so long a post and thanks for listening. Prayer and my faith is what is getting me through this right now.. God Bless you all who suffers with this awful thing... Jancie

[taape]

How did it go at the doctor's today? I hope you have a better treatment plan. I don't have experience with what your going through but I hope things get better for you.

Getting free samples of medication is a good idea. Also, depending on your insurance the doctor can request an exemption if there's a medication that you absolutely need which isn't normally covered by your insurance company.

[Jancie52]

Hi, I am not sure how it went, he told me to take probotics. He put me on carafate before every meal and at bedtime and levsin every four hours or as needed to help with lump in throat if it is spasms?? The carafate he said will help heal my throat. Stay on two prilosec in am and pm. I told him ent said I have LPR and he said what is that?? He is a gasto dr...... I really don't know what to think or do. My husband asked him what I was supposes to do when my throat is full and i feel like I am choking and he said Well lorzepan is not the ansewr and i won't give it. He said he don't know what the answer is or what reall to do other than what he is doing... I am kind of upset about all this. I have a egd done and bam I feel like I have all these symthoms after it but he said it could not have nothing to do with the eng. Has anyone else had any kind of experience like this??? Is there a happy potion for all of us??

[Kassie29]

I started experiencing heartburn, painful swallowing, lump in the throat, acid taste, hoarseness back in September. Was first put on lorazapem. Did very little to help me. At the end of November, was switched to the stronger PPI -- Nexium. I noticed quite an improvement after a few weeks. I also started eating a probiotic yoghurt every day and noticed more improvement. I have also changed my diet to exclude tomato and citrus products, and tried to limit my chocolate and coffee intake. I'd say my acid related symptoms were an 8 out of 10 back in September and right now are at about a 2. I'm doing all my normal activities again. The Nexium helped me get back on track and the accompanying lifestyle changes have helped me stay there.
Hope you feel better soon, Jancie. These symptoms are just so awful to get through.
Kassie.

[Jancie52]

Kassie, How long were you on nexuim that u noticed some improvement. I want a cup of coffee so bad but am afraid to try it...Jancie