Hi Traci,
That's interesting you took Provigil and steriods and had the same reaction as me. Maybe we should both look into the sleep disorder thing Snoopy was suggesting. My sister has an autoimmune disorder, and she also has a sleep disorder.
All I know is, it feels like a disability, even though on the outside nothing seems to be wrong. With the fatigue, I had a great amount of trouble concentrating. I couldn't even do my work on the computer, I couldn't think! Last week, I went to town to the grocery store for the first time in 6 weeks. I bought foods that I had been studying about that might help me, but couldn't concentrate enough to buy the rest of the family groceries while I was there. Since then, though, things have been slowly getting better.
Glad I could help in some small way. It's good to be the one helping, I am usually the one needing the help!
If you search "diet for MS" on the internet, all kinds of stuff will come up.
You will get more information than you will know what to do with. The list of vitamins you need to take, and the list of foods you cannot eat, will get longer and longer! It can be overwelming.
The Swank diet sounds good to me, but it sounds pretty restrictive. I haven't went all out on it yet, as I am not sure exactly what to eat and what not to. I am just trying to do what I can, and what I understand of it right now.
For about the past week or so, I have not eaten red meat. I have not eaten sweets or chocolate. I stopped the caffiene, diet drinks, and tea. I am eating way less cheese, and no whole milk. I bought low-fat butter, sour cream, dressing, cream cheese, etc... I am not saying that I won't ever have these things again, but for now something seems to be helping.
I have eaten lots of fresh fruits and vegetables, and drank 100% fruit juice. I am eating granola bars, wheat thins and pretzles. I am eating white meat (chicken), and tuna. Fish is supposed to be good, as it is a natural anti-inflammatory, but the only fish I like is tuna.
Anyway, I do think this change in eating habits has helped already.
As for vitamins, I am only taking a one-a-day right now. I am planning to start taking fish oil, as I understand it is an anti-inflammatory. There are several other vitamins out there that sound helpful. I am interested in taking B12. Lack of B12 can cause nerve damage. I have always been on the anemic side, and anemia can be a sign of lack of B12. Everywhere I read about vitamins for MS, these two came up. A nutritionist also told me that olive oil (1 tbsp a day) would give my body what it needed to make the mylon sheath which is what has been destroyed around the nerve.
There is much information on vitamins, minerals, and herbs for MS. Just do a search for "vitamins for MS". Like I said, the info. might be too much.
Glad I had the oppertunity to meet you!
Would love to meet you in person, however, I don't know how this could be accomplished. There are rules about giving out certain information here.
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