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Old 03-26-2008, 10:56 AM   #11
rumpled
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Re: POTS and florinef.. could use some help

Oh man... Well hopefully with the lowered dose, your headache will recede. I would try some high potassium foods like V8 or a baked potato (eat the skin) and see if that helps. Good luck with the appointment! Let us know how it goes.
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Old 03-26-2008, 03:20 PM   #12
sam78
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Re: POTS and florinef.. could use some help

So does florinef make you lose potassium??? That is definetly not a problem I can have. When I get a potassium much less than 4 I have increased heart problems. SIGHHHHHHHH
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Old 03-27-2008, 01:48 AM   #13
Unhitched
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Re: POTS and florinef.. could use some help

How much florinef do you take? I started out taking 0.1mg florinef once daily know I take .25 tablet daily. Does your Dr. specialize in Addison's disease?
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Old 03-27-2008, 11:56 AM   #14
rumpled
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Re: POTS and florinef.. could use some help

If your potassium is high, that is a sign of an adrenal crisis. K goes high, Na goes low... some addies go low on both (I happen to be one of them) so it is not a hard and fast rule but that is the norm. So you probably need to avoid potassium and push the sodium harder - but the florinef will help you hold on to both as it helps you hold minerals in general. K being low or high makes the heart go wild. Sorry - ingore the potassium advice... but any salt tablets you get have to be non-buffered as they buffer them with potassium.

Lucky to only take .25, Unhitched... do you take salt tablets?
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Old 03-28-2008, 02:47 AM   #15
sam78
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Re: POTS and florinef.. could use some help

Ok so went to the doctor today and yes they dropped my florinef again, this time to just 0.1 once a day. They would like to add salt to me but because I have really bad stomach problems I cant take the salt tablets. Im ok with the potassium because high is good for me. However he didnt want to do any testing of the adrenals yet unless I dont get any better. I'll give him that. So we'll see. Unhitched.. you got to read back in my post, I am not taking Florinef for adrenal problems (ie addisons).
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