It appears you have not yet registered with our community. To register please click here...


 Home Message Boards Health Guide Join for Free User Blogs Board Index
Search
 
Forgot your username or password?
Old 04-01-2008, 05:45 PM   #21
sam78
Veteran
(female)
 
Join Date: Jun 2007
Location: Washington State
Posts: 385
Re: POTS and florinef.. could use some help

Yes I have tracked. I am low in the morning and higher in the evening. I am not at the point where i am getting dizzy or anything. I was just wondering if it would help to even things out. Wondered if that would help stabilize my blood pressure and help with headache.
sam78 is offline
 
Sponsors Lightbulb
 
   
Old 04-02-2008, 10:33 AM   #22
rumpled
Veteran
(female)
 
Join Date: Jun 2007
Location: NJ
Posts: 438
Re: POTS and florinef.. could use some help

Ask the pharmacist about the half life and if splitting will help even things out. If you are low in the morning, actually, that calls more for an evening dosage, really, if you think about it?

Last edited by rumpled; 04-02-2008 at 10:34 AM. Reason: forgot to add word
rumpled is offline
 
Old 04-02-2008, 02:35 PM   #23
sam78
Veteran
(female)
 
Join Date: Jun 2007
Location: Washington State
Posts: 385
Re: POTS and florinef.. could use some help

per my med book the half life is 18-36 hours. They want me to try a 0.1 in the morning and 0.5 in evening. Key will be if my head tolerates it. If I have headaches with it then they will try splitting 0.1 into two. We'll see what happens i guess.
sam78 is offline
 
Old 04-03-2008, 10:41 AM   #24
rumpled
Veteran
(female)
 
Join Date: Jun 2007
Location: NJ
Posts: 438
Re: POTS and florinef.. could use some help

Logically speaking, seems like the opposite would work better - the full pill at night and the half in the morning?
Then you could sleep though the headache and wake up with a BP and the half pill would get you through the day...
I hope you get it figured out so it feels right for you!
rumpled is offline
 
Old 04-17-2008, 11:02 PM   #25
sam78
Veteran
(female)
 
Join Date: Jun 2007
Location: Washington State
Posts: 385
Re: POTS and florinef.. could use some help

Hey rumpled, I just wanted to give you an update. I had a horrible reaction to florinef. According to my cardiologist only 5 in 100,000 get it. Too much fluid accumulated in my brain causing bleeds in my eyes even. I had horrible headaches. I had to undergo several spinal taps to relieve pressure to save my eyesight. Of course off the florinef. We switched to midodrine. Was pretty scary. Life changing experience that is for sure as I sit here trying to type barely able to see the screen. Just wanted to let you know what happened. No more florinef for me!!!
sam78 is offline
 
Closed Thread

Bookmarks

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off











All times are GMT -4. The time now is 09:02 AM.


Site owned and operated by HealthBoards.com (TM)
Copyright and Terms of Use © 1998-2010 HealthBoards.com (TM) All rights reserved.
Do not copy or redistribute in any form!