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Old 05-03-2008, 12:47 PM   #46
feelbad
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Join Date: Dec 2003
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Re: Sammy??

i guess that could be a possibility. we may have to go there. don't know just how that all works.
there are sooo many possible problems that could be contributing to all that is going on that it will just take that MRI to just better define things out for the doc sammy. one big thing i have now is like a 'cramp' feeling inside the actual joint itself that seems to radiate out into the front in that side of the chest wall? this is new. i think this stupid puppy,and just having to pull on him and also since him and the other dog like to 'wrestle" around on the floor all the time,i seem to be a magnet for them and end up with being slammed into a wall or my bad knee gets hit with that stupid big head that 'puppy' has. god,the puppy just turned like 18weeks? and is as big as our full grown dog already. hes just forcing my arm to have to do things since way long ago,that i really should not have been doing. he has these big old mitts for paws. god i am going to get killed here soon.

i am just having more real pain now than i did pre PT,and the TPs i have are just sooo nasty. we cannot get into the 'deep' myo right now and the crainio is an absolute no no til i am released from the surgeon with alot more solid rehab done. but even the light myo i have been getting does help tons in its own way. i just love my PT guy. i am really curious mysekf about what the osteo people are going to be doing to you too. i am sure whatever it is,they WILL be very gentle with that area considering everything. hopefully they also do myofascial for you,since this IS an osteopathic type of treatment. maybe even the craniosacral? there is a big link between traumas that happen to our body and how they actually store themselves or imprint onto or into our central nervous system. any traumas(pretty much anything that has caused you alot of pain?)tend to kind of impint just like things do within our brains in some way? i didn't know this either til i started seeing the new PT guy.this man has been doing this stuff for over 18 years now and i have learned ALOT about my own body from him and why things are the way they are. he said when they actually cut into my cord,it was a major major trauma to my CNS. he also asked about past injury and i just cracked up. i was sooo accident prone as a kid and growing up(tom boy ya know) that my dad told me he was going to wrap me up in cotton and just keep me in the local ER in a room somewhere,he WAS joking of course. but it seem we were at that ER an awful lot with me. we have alot of "traumas' stored in here. this osteo therepy could be the best thing for you right now ya know? thats the big thing i have found in trying to actually manage this ongoing hell inside my body. don't knock it til you have actually given something a really good go.

i really thought that this therepy my PMs NP was telling me about(the cranio andthe myo) was going to be some stupid thing that was not going to 'do' anything for what i had going on since no other type of therepy really has? but she was very pssionate about it and couldn't say enough about this therepist she wanted me to see so i just thought,what do i have to lose ya know(found out from him that my NP also sees him on a professional basis,go figure)? much to my suprise,even afetr the first visit,i could really just 'feel" certain changes in my body. a bit less tense up in my neck and upper back area? it went away soon after but not becasue it did not work,but becasue i just have that bad bad TP problem going on that has to be worked out over time. kept going back and things really did start to finally loosen up up there. unfortunetly just when things were starting to get much better,the last of that shoulder tendon tore and i had to stop. BUT i am going to be going back into that therepy again once i am cleared to do it. this pt place is also connected to my surgeons group practice(did not plan it this way,it just happened to be where he works out of) and they know how great of a therepist he is. you just wont know what is really going to work for ya sammy. if you can,and you remember,lol, ask them just what therepys they are doing on you when they do it,i really am curious. just go with the flow and see how things go.

from what you stated here,it sounds like you actually have that MRI on monday? is that right? when is your osteo appt? DEFINITELY tell the MRI place when you fill out the forms before hand about that burning area you have going on,it will help when the rad reads your films to actually know just what areas of your body are being affected and by what. they NEED that info in order to try and track it back to a source. did you mention this to your surgeon at all or PT? they should know too hon. that 'could' be spinal or muscle. it just needs to be on that pre MRI form that you fill out ya know? to me,in what i have just dealt with,it really sounds spinal in order to be felt as low as it goes on you ya know what i mean? something is really irritating the heck out of the nerves back there. it actually sounds possibly like your sciatic actually. but if this is all interconnected to what IS your upper torso at this point,one thing can trigger another. you just DO have alot of inflammation going on in there.

just be as specific and forthcoming with ALL of your symptoms,and where. if you need more room,write an arrow to the back and finish there. just let the tech know that that info is on the back. believe me, i have ahd to do this too when there has been way more symptoms and very little room to write them. they will be faxing the stuff to whoever will be doing your interpretting so just make certain they know there is also info on the back. ya know, i don;t think you ever actually answered the one question i asked about whether or not you feel any temp changes at the area of throbbing? does this actually feel warmer to the touch than other areas? if it does,make certain to tell them that too.they just need EVERY detail of your ongoing symptoms connected to that particular area. depending upon what you actually put down will dictate just what areas they look into more in depth. you just need and want the best read possible,and all the right angles.

well glad you got abck here hon,was a bit worried when i didn;t see a new post yesterday. i am like that. i am kind of curious as to what i have in store at my next PT since at my last ortho visit,he said he was going to allow me to use the bands? it is more strength training than anything. this should be fun feeling like i do right now. just take it VERY easy hon. god i hope that MRI shows some good solid info for ya. i do think maybe tomorrow we should really start a new thread,ya think? i am sure the mods would be happy. til later. marcia
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Old 05-03-2008, 03:17 PM   #47
MountainReader
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Join Date: May 2006
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Re: Sammy??

Feelbad,
I know I am not going through as much as you during the healing process, but I can tell you I started having the "cramping" in my shoulder for the last 1 1/2 weeks. I get it throughout the day. My PT explained the healing process to me and said it is fairly normal. He said to keep icing my shoulder down throughout the day to help. It does hurt though. I have taken to using my Lortab this week. I pretty much stopped them after the first week post surgery. He indicated it should start getting better in the next week or two.

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Old 05-04-2008, 10:43 AM   #48
feelbad
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Join Date: Dec 2003
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Re: Sammy??

thanks MR. this is the most insane surgical recovery process i have ever gone thru,really. i have had six surgeries with two on my right knee two on my c spine,one into my spinal cord and just for the heck of it ,an aneurysm coiling,and this one,except for the first few days after my cord was actually cut into and the pain from that for the first couple days i just wanted to die, this has been right up there only more drawn out.

its just been one heck of a long road with this pain that you think is gone then you just do a little something at a different angle in PT or at home,and bam,its all back again.
i did see where you posted setting up a shoulder board,and i would have to agree that it IS a needed one. we have kind of had alot of posts from people more recently with the same shoulder type issues. i knew right away that this mess and pain i was feeling was not coming from my c spine.

thanks again for the info. man this sucks. FB
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.
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Old 05-06-2008, 11:24 AM   #49
feelbad
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Join Date: Dec 2003
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Re: Sammy??

hey hon,was thinking of you yesterday. hope things weren't too bad for ya. i do hope your pain isn;t keeping you from posting. if you are reading this,i am sending a nice warm but gentle hug your way. give me an update when you can,just a bit worried thats all. hope all is well. marcia
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