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Old 05-11-2008, 12:43 AM   #1
kmatthew
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Location: Houston, Texas USA
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Any experience with weaning off of some of cortef

Today was supposed to be my first day of attempting to wean of 10 of my 30 mg of cortef. I recently weaned off florinef due to swelling and heirline fractured my left foot due to blacking out without warning.
My blood pressure is still very low 90/59 sitting with a pulse of 70 90/61 standing with a pulse of around 91 to 100. My clumisness is better. It has now been two weeks today, took a month to get off.
I was supposed to cut my noon dose of cortef in half and then take my 10 mg at 5 which would put me at 25 instead of 30. I am supposed to maintain this pattern for three weeks and then cut out the noon dose and then just take the am and pm doses at 20.
Needless to say I tried. I made it until 3:45 felt the need to go to sleep and dizzy so I took the half from lunch and cut it in half again and took it at 6 and the dizziness is better, but still there.
Anyone else expereince this when trying to reduce dose?
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Old 05-11-2008, 12:13 PM   #2
rumpled
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Re: Any experience with weaning off of some of cortef

Hmmm...
Your body needs a certain amount of uumpf to get it through the day.. and then you are getting um, 10mg to sleep? I don't understand the pattern the doctor has you on as it does not match a natural body.

A natural body is highest in the morning, cuts to half in the afternoon and falls to near nothing at night.... so being cut off in the afternoon is making a weird cycle.

You would probaly feel more normal to drop an evening dose and keep dropping those. You would probably sleep better too. Most people take the bulk of their dose in the morning and the remainder in late afternoon. If you were taking 25, that would mean 15 or 20 in the morning and 5 or 10 at 2 0r 3pm. Or you can spread it out to 3 times a day in 5mg increments, but most do not take it past 4 or 5pm as it would interfere with sleep.
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Old 05-11-2008, 01:10 PM   #3
kmatthew
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Re: Any experience with weaning off of some of cortef

As I reread what I wrote in the first post, it does not make much sense.
Let me try again.
I usually take 10mg in the morning at 6
I take 10 more at noon
I take 10more at 5

Doctor told me that she does not want me to go too long without doses so she wants me to try and eliminate my noon dose, and back up my 5 oclock dose until around 4 to try and maintain my blood pressure. Based on my testing, she said I will never go below 20mg of cortef, but she is not sure I will be able to go below 25 so she wants me to try and see.

I was supposed to cut the noon dose in half for three weeks and then try and eliminate. I cut it in half yesterday got real dizzy took my 10 at 5 as always and at 6 still dizzy do I took another 5 mg at 6. It helped a lot but not all the way.

Today I am going to try taking half plus another half of a half at lunch and see what happens. I guess that would make it 8 instead of a full 10
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