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Old 06-02-2008, 11:26 AM   #6
mkgbrook
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Join Date: Aug 2006
Location: Chattanooga, TN, USA
Posts: 6,486
Re: Scared and confused

Dito on Access12

Your FTs and TSH are hyperthyroid in character.

You had a biopsy of a nodule and that came back alright.. did they perform a thyroid uptake scan on you?

You need the hyperthyroid antibodies run as well as an uptake scan in my opinion. Be wary of an MD that pushes for an RAI without trying anti-thyroid meds first. I have a mother, four aunts, great aunt, second cousins.. I think you get the idea with a wonderous variety of autoimmune thyroid conditions. Hashimoto's is the dominant one.. but we get our fair share of Graves too. Actually we often Get Graves and Hashimoto's.. but that is another trial.

The antibody tests that you should get your GP to run so that you have them in hand for the endo are..

TPOAb for completeness.. you got the TGAb. 85-90% Hashimoto's patients have the TPOAb's. 12.6% of the population randomly tested in the US had TPOAbs present.

TSI and TRAb .. 75-60% Graves patients can be identified by these tests.

In the mean time how are you feeling?

Do you have any heart issues? Are you on Beta-blockers? There are things that can be done to make it easier for you. Now what were your ranges for the following. Depending on your Ft balance you may have a pituitary/adrenal issue mucking with things. If you have adrenal issues you can feel hypoT despite hyperT blood levels. Many symptoms of hypoT and hyperT are shared. You have to follow certian ones and use them as a guide to fiddlw and fine tune the blood levels.

Free t4 57
Free t3 35

TSH .05 (0.3-2.5 is the accepted range as of 2006)

MG
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Old 06-03-2008, 08:37 AM   #7
jordash
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Join Date: Mar 2008
Location: Parry Sound, Ont. Canada
Posts: 4
Re: Scared and confused

Quote:
Originally Posted by mkgbrook View Post
Dito on Access12

Your FTs and TSH are hyperthyroid in character.

You had a biopsy of a nodule and that came back alright.. did they perform a thyroid uptake scan on you?

You need the hyperthyroid antibodies run as well as an uptake scan in my opinion. Be wary of an MD that pushes for an RAI without trying anti-thyroid meds first. I have a mother, four aunts, great aunt, second cousins.. I think you get the idea with a wonderous variety of autoimmune thyroid conditions. Hashimoto's is the dominant one.. but we get our fair share of Graves too. Actually we often Get Graves and Hashimoto's.. but that is another trial.

The antibody tests that you should get your GP to run so that you have them in hand for the endo are..

TPOAb for completeness.. you got the TGAb. 85-90% Hashimoto's patients have the TPOAb's. 12.6% of the population randomly tested in the US had TPOAbs present.

TSI and TRAb .. 75-60% Graves patients can be identified by these tests.

In the mean time how are you feeling?

Do you have any heart issues? Are you on Beta-blockers? There are things that can be done to make it easier for you. Now what were your ranges for the following. Depending on your Ft balance you may have a pituitary/adrenal issue mucking with things. If you have adrenal issues you can feel hypoT despite hyperT blood levels. Many symptoms of hypoT and hyperT are shared. You have to follow certian ones and use them as a guide to fiddlw and fine tune the blood levels.

Free t4 57
Free t3 35

TSH .05 (0.3-2.5 is the accepted range as of 2006)

MG
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Old 06-03-2008, 08:44 AM   #8
accessn12
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Join Date: Oct 2006
Location: greasy rock, tn
Posts: 3,305
Re: Scared and confused

That's an easy one. About 30% of hypers gain weight instead of losing. It's the large amount of food we consume. I think there's a little bit of genetic predisposition going on as to which hypers are going to gain and which are going to lose.

You're tired cause your body's going faster than you can keep up with it. It's only during a manic period that you will actually be able to utilize all that extra energy and I think that's cause your head feels so good you don't care how tired you are. When that's over and done with, you crash and burn. The rest of the time, you're just plain tired. Fatigue is on the good lists of symptoms.
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Old 06-03-2008, 08:56 AM   #9
jordash
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Join Date: Mar 2008
Location: Parry Sound, Ont. Canada
Posts: 4
Re: Scared and confused

thanks for that info. I do not really know much about the thyroid, so my mind is all full of questions, as well as thoughts.
With the fnb they had to do it twice, the second time around, I heard the guy say if we dont get anything this time it is benign. It came back as having colloidal cysts.
However I am questioning that, due to the fact the doctors admitted to me falling through the crack after feeling unwell for the past 2 years.
I have been having a sore throat more burning then anything, just thought it may be a cold coming on, olong with that I have been short of breath, and it feels I got something stuck after I swallow, at times I think I am losing my mind!!!!!
I was admitted to the hosp with arterial fib, they used the pattles to regulate my heart.
I went from taking 5 mg of tapozole to 30mg, along with 200 mg of bete blockers.
I think the light headness is coming from the tapozole.
In my thoughts I am thinking , I dont trust these doctors anymore , and I want to have another fnb, just to be sure, or have it surgically removed. I just dont feel hypo at all, expecially when it comes to the energy part of it. However the racing of the heart well that is hypo for sure, I shake like I have had 40 cups of coffee. lol
Thanks again, and if you can put your input in that would be great, then the doctors wont pull the wool over my eyes.
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Old 06-04-2008, 07:40 AM   #10
accessn12
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Join Date: Oct 2006
Location: greasy rock, tn
Posts: 3,305
Re: Scared and confused

I don't think any of us knew what a thyroid was when we were first told that the silly little gland had run amok. The doc looked at my neck and asked "how long you had that goiter?". My response: "What's a goiter?". There is much to learn in the world of thyroids.

A colloid cyst is nothing to worry about. Collagen is normal tissue, not only in the thyroid, but the rest of the body too. It is the glue that holds the body together. Sometimes an overactive thyroid makes excess collagen. You can take your fear of cancer off the list. There's no sense in having them stick any more needles in your neck.

I was undiagnosed for a long time too. It happens. It shouldn't, but it does. Thyroid symptoms are often mistaken for mental illness or other diseases and hyper is rare enough that a lot of docs don't know how to recognize it. I found a vast relief in finally finding out I wasn't totally out of my mind.

The lightheadedness isn't coming from the tapazole. It's coming from the hefty dose of beta blockers that you're taking. As your body gets used to that high a dose, it usually eases off some but some people never quite shake it. It's still better than hyper symptoms. I think once your thyroid's more stable, they'll be able to drop the dose of betas back some but since you've had afib they're being extra cautious about keeping your heart rate under control. Which beta blocker you taking? That can make a difference too.

Of course you don't trust the doctors. Who would after two years of hell while they sat around with their thumbs up their arse? Your best bet is to educate yourself. Learn as much, if not more than the doctors do about it. Now, that ain't going to be hard at all. You need to start by finding out the particular form of hyperthyroidism you have. Most likely, it'll turn out to be graves cause that's the most common but you want to know for sure what you're dealing with so you may consider all your treatment options. Have at least your TSI antibody level tested to start and we can go from there. You're on the proper treatment right now. 30mg of tapazole will probably send you hypo after a while but that's ok. It's really important to get your hormone levels down right now to protect your heart. Once they're down, they can start backing off the dose of tapazole. They should be testing your hormone levels every 4 to 6 weeks until it has stabalized on the meds. Then the testing can be less frequent. It's going to be awhile before you feel 100% again.

In the meantime, I think you will find a lot of comfort in this place. It's so nice to know that you aren't the only one going thru it and it's a place you will find you are never trying to go it alone. Gripe, dump, ask questions, laugh. Learn from other people's successes and failures. You will make it thru this. The rest of us have and I don't think any of us has strangled a doctor yet.
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