Treatment for Leaky-gut syndrome due to MMR vaccine - Page 2

ronaldcrumpler · 03-31-2001, 05:56 PM

Hi. I am new to the healthboard room and I have read alot of your notes. It's great that you have read so much into the topic because I also have been trying find information on autism research. I really began to notice that my son Matthew had problems when he was 3. Before, my ex-husband kept assuring me that he was a late talker because his uncle did not speak until he was 4. At my son's 3rd birthday, I decided to find out what was wrong. Soon after, I found out he was Developmently delayed. When I found out, I tried to find information about this and hit a brick wall (1997) and the information I did find was very depressing and discouraging. I also found myself being alone because no one knew anything about it and other parents did not understand my son's "strange" behavior. I felt I was being criticized by others and that I was not parenting properly. Even after I met some others who had special needs children, I found that many of us were totally at a loss about what to do. Then when I read the article in Parent magazine about autism and finally felt like I had some hope. Not only did I find that my son fit the other children in the article, I found a way that I could help my son. Even after I had this encouraging news, I found that many physicians do not keep informed about these "treatments". I had a hard time trying to finding a physician who would actually listen about the connections with allergies & autism, even about secretin. First, I immediately removed milk from his diet which was hard because he drank it a lot. The very first day off of the milk he had to hold onto the walls to walk around. He was going through withdrawal. It was sad to see him like that but it was encouraging. Slowly, at preschool, his teachers noticed improvements in all areas. It was not until I moved last year that I found a wonderful physician that was open minded about various treatments and now my son has improved ever since. We had the Food Panel testing and he was found to allergic to wheat, milk, yeast, sesame, cranberry, and tomatoes. He has been off of milk products since May of 1999 and the rest since Oct 2000. It is amazing the number of products that contain wheat (toothpaste, etc.). Recently, he has been evaluated for a leaky gut and possible yeast infection. Matt has an elevated number of Klebsiella pneumoniae in the GI tract and his organic acids test came back with the presence of a number of organic acids produced by yeast. Instead of Nystanin, Matthew has begun taking Yeast Control, a product by Kirkman. It can be used in conjunction with Nystanin or as an alternative. The strain of Klebsiella that my son has is sensitive to the oregano found in the product. Matthew is also taking Pro-Bio Gold from Kirkman to replenish his intestinal flora. I have a question for you. Do you have any idea how long will it take for the complete elimination of the yeast or is it a life time worth of treatment? My son is also on Cod Liver Oil, urecholine and GABA. Thank you for letting me ramble on but I am so glad that I have found this healthboard because it can feel a little overwhelming with the diet and meds. Good luck to you and your research and I hope to chat with you soon.

eweejoe · 04-01-2001, 01:30 AM

WOW! I am totally amazed after reading all of your posts. First, it makes me very angry that you guys have such a hard time getting your doctors to help you, or at least do the testing/biopsies you want done in your search for finding answers to your children's problems. Secondly, I must say that since I have been reading the posts on this board I am beginning to have some 'light bulb moments' myself. My son is also autistic, but he has a primary diagnosis of Tuberous Sclerosis (tubers/tumors in his brain). I have thought all of his life that his problem was retardation due to the TS. It wasn't until a year ago (he's 8) that I discovered that Autism was present in almost 50% of kids with TS. I had always felt like he was autistic, but like you guys, his doctors just chalked it up as 'developmentally delayed'. The part that has my wheels spinning is...on Oct 7, 1992 my son had a MMR. I don't recall seeing any major change in him, but on Nov 23, 1992 he had his first seizure(due to what we later found out was the TS). He wasn't diagnosed with seizures until Dec 19. At the time he was admitted to the hospital for an EEG he was on an anti-biotic for URI, brochitis, and croup. He was put on Phenobarbitol and Dilantin at the age of 6 months. He was on it for a 1.5 years. He quit cooing, he quit sitting up, he quit rolling over, he quit making eye contact. He was very unhappy and whiney all the time. When he reached the age of two, he was taken off of the Phenobarb and put on Depakote. Within a month his physical delays were almost non-exsistant. He was walking, smiling, laughing. He will be 9 in June and has never developed speech. He displays all of the classic symptoms of Autism. I also read on here that research has shown that Phenobarb is the only anti-convulsant medication that has been proven to cause brain damage Getting to my point, how do you guys know that your kids have the food allergies and intestinal problems? If I knew how to tell, I would treat my son the same as you guys have treated your kids or are trying to get treatment for them. Keith appears to have no allergies or any type of intestinal problems. Do they manifest themselves in any way other than behavior? He is very healthy, rarely ever sick. He does get very angry and hard to control when he gets hungry sometimes. I don't know whether to believe that his MMR could have had something to do with it and his phenobarb just disguised it by doping him up, or did the phenobarb cause damage to his brain and rob him of his critcial years of development? I have felt the later all along, but now just don't know what to believe. Sorry to run on so long, I am just very curious and interested in learning more about what you guys are talking about. Good Luck to both of you in your quest for help for you precious ones. Take Care!!

eweejoe · 04-01-2001, 01:32 AM

One more thing I wanted to ask..how do you guys get your kids to take all of these medications? My son takes Tegretol to control his seizures and it is a constant battle to get him to take that, much less anything else. Just curious. Take Care!!

krisyd · 04-01-2001, 03:51 AM

Hi Ro, and Eweejoe,
Ro asked about how long it takes to totally elliminate the yeast. Well I must first add that I am not an expert, YET! But I will share what I have researched and believe to be true for my sons situation. The yeast will never be totally elliminated, as it is a part of all olf our bodies. However, for those people who have a over growth for what ever reason, they need to be balanced. I read that there is an enzyme in our intestines that works tokeep the yeast and bacteria in check, in other words balanced. This enzyme may not be functioning properly in the intestine of children with the autistic spectrum disorders, due to the damage in the intestinal lining. So what I believe to be true is that if the intestine could be cured, which I know it can be, than these kids would not have all these problemsd with the toxins from yeast and bacteria overgrowth, as well as intolerances and allergies to foods. The allergy is really a true toxic effect because the high protein molecules which are undigested are slipping through the intestine and attaching to neurotransmitters causing all sorts of behavior and psych reactions. I hope that was of some help. I encourage you both to avoid any further vaccinations on you children, regardless of what you doctor says. If one child was sensitive, you are bound to have another sensitive child. My 8 month old developed asthma, no family history after his 2 month shots. He is also having the same bowel patterns as my 3 year old. So I would be cautious. As for Eweejoe, I would have to encourage you to continue to research and start by contacting Dr. Shaw at the Great Plains lab. Ask for a free consultation. Share with him about your child, and ask him what tests he suggests. I would guess he would suggest a Organic Acid and yeast test as well as the 90 food allergy panel. Once you have this performed you will have a better understanding of where you son stands. Children that don't speak can't tell you how they feel in so many words, they can only act out and for me I never could comfort my son when he did this but little did I know he was filled with toxins thatr were overwhelming his liver, and his nervous system. What testing did they do on your son to dx. him with the Ts? Did you go for a second opinion? I strongly suggest that, as well as removing all offending foods, milk, eggs ( all dairy), soy, casein, gluten, whey, preservatives, dyes, artificial colors and sweetners. Stevia is a natural sweetner that has no effect on your pancreas, and it doesn't cause the yeast reaction. Do expect the die off reaction, if he has yeast. I also suggest that you mention to his neurologist that you are going to attempt this since he has a seizure disorder. The yeast causes a die off toxin that effect the child in a way where they can get sluggish and wobbly on their feet for the first few days until the initial yeast die off, than from their it is just maintaining a balance for the yeast no to overgrow by using nystatin or a natural antifungal. Just be careful not to get an antifungal with sugar or die in it, it will defeat your purpose. Just for your info toxins can overload the nervous system and cause seizure activity. I don't suggest taking your son off his medicine, but I do suggest you telling your MD what your plan is. I don't know much about TS, but I know that in many cases seizures can be a symptom of a underlining problem that in some cases could be due to toxin overload. How were the tumors in his brain diagnosed? I really have a hard time with medical dx's being that I have been in this feild for 13 years and seen that docotrs are very human and inperfect. I suggest a second opinion with a doctor that works specifically with autistic kids, and completely see's the connection with vaccine injuries. I would probably, in your case Eweejoe, research and try to find out if your boy had a vaccine injury. If he began life normally, and than regressed that is a flag if you ask me. I wish you both the best. Please keep intouch. God Bless you both

krisyd · 04-01-2001, 04:06 AM

Eweejoe, have you tried crushing up the tegretol and putting it in either apple sauce? I am sure you probably have. I usually give my son his culturelle capsule opened up and mixed into a tbsp of rice milk. I just pull the liquid up in a dropper and squirt it toward the inner cheek as this is easier to avoid the gag reflex. Also MMR is not the only vaccine that has caused injuries, DTP is another big one. The Pertussis in DPT had caused injury and some deaths. Do a search on vaccines and autism, and you will find a lot of info. Even Hep B has caused many problems. Bye for now. I hope that helped some.