It appears you have not yet registered with our community. To register please click here...


 Home Message Boards Health Guide Join for Free User Blogs Board Index
Search
 
Forgot your username or password?
Old 10-13-2004, 06:15 AM   #1
Sabrina.P
Newbie
 
Join Date: Sep 2004
Posts: 3
Unhappy Spondylolisthesis - need some advice

I was wondering if anybody could give me some info and hopefully some advice on what to do now.
I had an accident springboard diving 19 months ago and when in hospital, MRI scans showed an L5 pars defect (probably something that i'd had for ages, but never had any symptoms). I was told about this defect a couple of months after, but i was never given any information about it other than i had two fractures in my back and if it still hurt in a year they would operate to sort it out. Well 19 months of physio and hydrotherapy down the line, having gone through some semi-good and some really-bad phases, i ended up back in hospital. After a week and a few more scans i saw the surgeon again. He said that the operation carried a lot of risks and as i still have 'semi-good' phases, it would'nt be worth the risk!!!
I was furious at the time (and still am) because i feel i've been strung along for the last 19 months, expecting to get back to full competitive sport, and someone has just pulled the plug on my life. The surgeon said he'd operate if and when the 'semi-good phases' are few and far between, but until then i had to get used to my new life as this is was its going to be like! I still cant believe it, it's a bit of a shock when they turn around and say that they cant help... but the hospital put the cherry on the cake yesterday when they decided to end my weekly physio as it did'nt appear to be of much benefit! I've been referred to a 'pain team', and a psychiatrist (?????) to help me deal with accepting my new way of life!
I've had cortisone injections in the defects about a month ago but it didnt seem to help. I'm seeing the surgeon again in november but as his only other option was an operation, and he doesnt feel it would help, i know it's going to be a waste of time.
There must be something that can be done to help. I can only sit and walk for short periods of time, and sometimes cant sit at all, and during a bad phase i get really bad leg pain and am housebound (mainly bed-bound). Is my pain likely to settle over time? Are there certain things i should avoid doing to prevent a bad-phase getting really bad? Are there any other ways of treating this?
Most of all though i need some advice on what to do with the rest of my life! I've been told that i can't have a job that involves prolonged sitting or standing, or any manual work. Having just graduated with a sports studies degree, it appears useless. Sport has always been my life, and getting used to the idea that i'll not be able to do any again is not easy, but what job can i get now??!!
Does anyone who is in my situation have a job, or got any ideas of what i could do for a living.
Any info on my condition and what i can do to help it would be really appreciated too... what does my life have in store for me?

please help, sabrina x
Sabrina.P is offline
 
Sponsors Lightbulb
 
   
Old 10-13-2004, 08:32 AM   #2
TRACI-65
Inactive
 
Join Date: Sep 2004
Posts: 16
Re: Spondylolisthesis - need some advice

..sabrina....i too have spondy..i was first told about it after a car accident.the xrays showed grade 1 and also the mri.the problem i had was i too could not stand or sit .only very short periods of time.mine was also pressing on nerve roots and i also have ddd.i did pt for over a year and i had no relief.i also had the spine injections.what a joke.did not even touch the pain.this was in 1999...i did return to work 6 months later on very light duty.but over the years i got worse.the pain now would go down to my left leg and foot feeling numb.the first spine doctor i saw in 1999 wanted to do surgery a year later to try and release the nerve root being pinched.but i was afraid...so in august of 2003 i was hit by a guy who stole a car and it damaged my spine even worse.now i was a grade 2 spondy and with herniations with spinal cord effacement.i was in so much pain i wanted to be free.so i had my surgery last dec and i had rods,screws and a fusion done.let me inform you that every bodys body is different.i did not get the results i had hoped for.i do believe the hardware is touching my nerves and i know i had some permanent damage.i am much older then you so you may have a better chance of success.most doctors dont want to operate unless they know the nerves are being pinched or damaged.you need to ask what grade you are and if there is anything showing on the mri.my new mri shows that i still have spondy a grade 1..so i am upset to have gone thru this long surgery and now this chronic pain that has left me jobless and not able to lift over 5 lbs or bend over.also did you have a xray or mri of your upper back.i was told by my first back doctor when you have spondy and have surgery the upper back will start to crumble as well.5 months after my surgery i noticed this new pain by my bra line killing me.and sure enough now i have t7-t8 disc herniation on my nerve roots too.get a 2nd opinion..good luck and i hoped i helped you some..keep in touch..
TRACI-65 is offline
 
Old 10-14-2004, 06:23 AM   #3
Sabrina.P
Newbie
 
Join Date: Sep 2004
Posts: 3
Re: Spondylolisthesis - need some advice

Thanx for replying, i'm a bit of a lost cause at the moment! I have spondy grade 1 and i've had x-rays and mri's done from about my waist level down, and it showed disc generation, of a disc a couple of vertebrae up (not exactly sure where though). Although i havent had the op, i take it this is related... they didnt persue the disc thing at all so i have little idea of what's going on with that. When sometimes i try and put my socks on standing up and dont support my back, something catches in my back and my knees often collapse, and then i cant round my back for the rest of the day. Is this part of spondy or something else?
I'm definatly going to get a second opinion after i've seen my surgeon on the 9th nov, but i have no ideas of who are the 'better surgeons', and i dont really know where to start looking.
Also one other question (sorry), what kind of work did you go back to originally after your accident?, or can you think of anything (work wise) that would be suitable for my back? As i'm at the stage of just starting my career it doesnt really matter what it is anymore, just something that i will be able to stick at and that doesnt hurt my back!
Thanx for all your help, i'm new at this and it really helps to have someone to talk to who has some experience with this.
Sabrina
Sabrina.P is offline
 
Old 10-14-2004, 07:19 AM   #4
flyonthewall
Senior Veteran
 
Join Date: Jul 2003
Posts: 1,141
Re: Spondylolisthesis - need some advice

Is your surgeon a spine specialist. My orthopedic spine surgeon has a spine fellowship.
flyonthewall is offline
 
Old 10-14-2004, 11:19 AM   #5
TRACI-65
Inactive
 
Join Date: Sep 2004
Posts: 16
Re: Spondylolisthesis - need some advice

..sabrina..i have been in retail over 11 yrs now.the only reason i went back to work was i was out of money and had 4 kids to raise.second..i knew the manager at my store very well and he put me in the position where i did no lifting ,carrying,pushing, pulling and etc.i also had help by my side when i needed anything done that my back did not allow.but i did not work steady..i would have to take some times up to a year off from the time that i went back to work on light duty.in my case my spine got worse.i have so much medical evidence that my filing cabinet is full.another wise thing to do also is keep all your own medical records.get copies.when i went to see my ns the one that did my surgery.he was going by my old 2001 medical reords not my 2003 ones.i had to correct him.that should of been a sign right off the start for me but i was stupid.i even have all my mri and xrays too.i had to buy them but i think it's worth it.well it's been over a year now since i have worked and i will be honest..i know i will not be able to return.they are now telling me that i am a liability.and they don't have any position for me.my old boss left the store so now this new manager doesn't care.good luck hun and keep in touch..
TRACI-65 is offline
 
Closed Thread

Bookmarks

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off











All times are GMT -4. The time now is 10:33 AM.


Site owned and operated by HealthBoards.com (TM)
Copyright and Terms of Use © 1998-2010 HealthBoards.com (TM) All rights reserved.
Do not copy or redistribute in any form!