I don't know if I'm feeling sorry for myself, or if I really am having a rough time. I've felt ill for 1 year, in lyme treatment for 5 months, I realize many of you are in the same boat, or worse. My worst symptoms, pre diagnosis, are behind me, the all the others are still here. The last 2 months taking Levaquin along with either minocycline or septra, plus adding flagyl, have been nightmarish. I've had to rearrange my meds schedule due to a 2 week cold and cough and changed flagyl so I wouldn't be taking it while away for a few days. As it is, I'm only on meds 3 days a week because of white blood count. Pain in joints and all over came with levaquin. My PA had me stop meds for 1 week. I started again last Wed. and pain came back. Some pain had never left in the week I was off med. My shoulders, arms and elbows hurt so much, especially in bed, I can't roll over and pull up blankets. I haven't found anything that helps with this pain. I am currently taking lodine, but haven't had much relief. I do go to Jemsek on Friday. In a way I'm looking forward to it, in case they can change meds not to make me feel so ill. I now dread the drive, as the driving time and appt. take the whole day. I am just in a dreadful mood, restless, fatigued, no motivation, mostly mental issues. Minocyn or combo with levaquin has made me itch dreadfully. Also, I read post about doubting lyme test. I feel I have lyme, but some symptoms are same as thyroid. I did develop thyroid nodules the same time I was diagnosed with lyme. According to endo, I do not have thyroid disease because of thyroid test results. I am on synthroid to shrink nodules. I had thyroid ultrasound last week to see if nodules have shrunk. I will go for more blood work and visit endo in the next 2 weeks. I am on low dose of synthroid, but will increase after my endo visit. I worry that some of my symptoms are thyroid related and not lyme and wonder if I will have proper thyroid treatment to resolve these symptoms. The endo or lyme PA cannot say for sure what symptoms belong with which ailment.
I changed my flagyl schedule so I am not taking it the same 3 days as other meds. As it is, I get chest pressure taking it, but it is magnified when taking it with levaquin. Will it hurt not taking flagyl the same days as other meds? I am taking the correct amount of meds in a week, just not at the same time.
Thanks for letting me vent. Not too many people care to hear this saga, again.
Raleigh86
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