My ENT told me he thinks I have MAV ( migraines with Virtigo ) As did my Neurologists. I get auras and BAD BAD dizzy spells. It seems I have had one for the past 8 years. They get better and much much worse but never go away! Not since April 17th 1999. I have been having problems from that day till now. It never goes away. I have had an MRI and a cat scan and countless other tests that all come back normal. I am 28 years old and have not been able to have any kind of a life because of this!
When it first started, I just wanted to die. I would think of ways to end it because the dizziness and being so tired all the time at only 20 made me just sick of life. I still get that way a lot of the time.
I am so lucky just last year I found an amazing man who is their for me. When I get really sick he will just hold me and rock me and tell me its all going to be ok.
Because of him I want to try and live. I want a life but can't start till I can get this under control. I do know that I have depression, fibromylgia, CFS and hypothyroidism.. But I am on meds for these and a few years ago they kinda helped. Or at least helped me too cope. But for the past 2 years its bad again and I have no idea what to do. The ENT also thinks I have silent migraines.. because I will have the auras in my eyes. Light will hurt me and so will some sounds..
It all started in 1999 when I woke up with a bad pain in the back of my head. It calmed down after some pain meds and a hot shower. ( I have had bad headaches all my life ) But I felt drained, weak and sick after words. But still it was my then B-F B-day so I took him to get his hair done. I went into the place and the lights were strange. It hurt to look at anything white/gray. And always has and still does with
"fluorescent lights".. When we left it was very gray and humid out. It made me feel very dizzy almost out of it. Then a bright light started flashing in my right eye. It was light lightning for about 5 mins off and on for about 2 hours I got very afraid and went to the hospital. I had to wear sun glasses it was just to bright in there for me.. They took blood and did a lot of test that included a CAT scan and everything was fine. They said it was a Migraine and I would feel better in a few days. BUT the out of it feeling, weak and dizzy feelings NEVER WENT AWAY.
There are some days I can handle it more then others, and there are some days all I can think about is ending it.. I am always so afraid I am going blind.. Mostly in my right eye.. I have had so many tests on both eyes and they are pretty good. Well I need glasses and after I started to wear them It helped a little.. But still my right eye sometimes feels dry and almost heavy?! I woke up last week ( my BF said I was sleeping with my hand almost in my right eye lol ) But I woke up and my eye was so blurry for almost 3 hours. In just the right eye. I never had that before and I tried not to get to afraid because he said I sleept on it. BUT with all my problems I can't help thinking I am going blind. It has not happened again, Altho I am very carful now lol. It seems my eyes don't want to stay in focus a lot. Maybe I am just looking to hard and thinking to much about it?? I do that a lot.
The other problem I have been having for years is, If its to bright or gray and cloudy I feel like I can't see. "But I can see". It hard to explain. It also makes the lightheadedness and dizzy spells SO much worse. So I try not to go out in that. That scares me a lot too. Like if its too bright it feels like I am seeing in a frame? Like its very light on top, both sides and the bottom but normal in the middle. I asked the doctor about this and he said its a kind of aura? But I forgot to ask him about when its dark in a room with a little light I can close my eyes and right when I open them, It like a flash of light for not even a second and them its normal?? SO as you can see by my long post and I am sorry about that.. That I am scared. I always think I am going blind or am dying. NO one should have a dizzy spell that lasts 8 years. I am lost, afraid and just about to give up... Can anyone give me some advise?
I am on Zoloft 200 MGS a day, Synthroid 0.25 mgs a day and Zantac 150 MGs twice a day. The ent just yesterday gave me Klonopin 0.5 MGs because I can't take Antivert/meclizine.. and I have not taken it yet. Has anyone had these problems? Please tell me what you did to help get your life back!!!
Thank you so much for reading
HUGS
DIANA
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