Chest Ct findings in a nine month old

[jrkwas]

My son was dx with Stage III Neuroblastoma (adrenal primary) when he was four weeks old. He completed chemotherapy and surgical resestion and on Aug 21 2002 had his first clean Chest/Abd./Pelvic CT. This was follwed by a second clean scan on Oct 1 2002 at which point he was considered No Evidence Of Disease. On January 7 2003 two abnormalities were found in the right hillar region a 5mm nodule on the peripheral lower lobe and a 1.9 x 2.4 cm mass in the mediastatum. A thoracotomy was preformed on Jan 10 to rule out metastatic neuroblastoma. The surgeon was able to resect and biopsy the 5mm nodule and per final path chronic inflammation and mild focal fibrosis consistent with psuedoitumor was the dx. Unfortunately the 1.9 x2.4 cm mass was not biopsied because of the positioning deep within the middle lobe of the right lung. The assumption oncology and surgery is making is that this mass is also a pseudotumor, however, pulmnology says this is highly unlikely. So I gues my question would be does anyone know anything about pseudotumors ie, growth rate or even multifocal presentation? It seems hard to believe a benign entity could grow at such a prolific rate and be multifocal in presentation. And with an underlying malginancy it seems as though we are not doing enough.

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Jennifer

[wrin]

I suspect this board is nowhere near specific enough for what you're asking about -- maybe post on the Cancer boards if you haven't already, and talk to your oncologist. Are there blood tests for metastasis for his particular tumor? Have they considered bronchoscopy for biopsy? (I realize he's very small and this would be difficult, but if they're afraid...)

[Sara Dancer]

I see your post is very old and you might not even check this board anymore. For you, or anyone else in a similar situation: my son had neuroblastoma and am willing to discuss it.