I am a mother of a 18 yr old boy that suffers from Traumatic Brain Injury caused from being severally shaken at 8 months of age by a b/f at the time while under his care for 20 minutes. (Long story)....But the end results are he is in need of long term care for everything, he is like a 12 - 18 months old infant and is dependant on everything from others. For years I have always done my own care for him, plus I have 3 other children 1 which is older and 2 younger siblings. I have always tried to hold a good balance between all my children and to do what every I can to make life as close to normalcy as I could. But, a few years ago my own health had started interfering w/ the daily care of my son among other things in my life and I started hiring in home health care to help w/ my son. I have had friends, family and caregivers that are contracted through the agency I contract through for in home help and each time it seems to be the same problem w/ the caregivers, they become too comfortable and forget that this is a paying job.
I like for people to feel comfortable in my home and I do what ever I can to work w/ each caregiver w/ scheduling that is convenient for them, if it is meal time i invite them to eat w/ us, family time of course I pay for them to come along whether it be an amusement park or a trip to the zoo, but the problem is they get too comfortable and forget what their job is.
They come in late anywhere from 10 minutes to 45 minutes late, they call at that last minute when they can't show up, if they call at all, they tell me after they are here that they have to leave early for what ever reason, which makes it very hard for me to make any appt for anything or time out w/ the other 2 younger children or any kind of plans. I find my son sitting in his chair more(recliner chair) instead of finding things for him to do, mind you he doesn't do much as far as activities, but he loves the outdoors. He does love to listen to scary movies and even w/ that the staff over do it and put in movies constantly and talk on the phone or constantly talk to me. The bottom line is they act as if they are doing me a favor and I comply or they will quit. In some ways yes they are helping me, but they are making good money for what they do, so it is not like they are taking away from their own time for free.
How do I get them to realize that this is a paying job and they do have requirements and expectation in what they are suppose to do?
With my own health issues it makes it very hard for me to do many of the daily jobs, my son is actually taller than I and because I have problems w/ my right side going numb I have actually fell w/ him when he was having a seizure and also fell just because of my own health issues. I had a hard time accepting help from others for the care for him and came to realize that me needing help is not failing him, but I am helping him, but now I feel he is not getting the care he needs because once again they feel way too comfortable in my home. I don't want to act like this is just a business deal and do want them to feel comfortable in the home while they are here, but how do I draw the line with out upsetting my staff and they up and quit. It was hard enough to find anyone that wants to help take care of the disabled so I am leery on losing what I do have....I feel I am in a tight spot.....