It appears you have not yet registered with our community. To register please click here...


 Home Message Boards Health Guide Join for Free User Blogs Board Index
Search
 
Forgot your username or password?
Reply Reply
 
Thread Tools Display Modes
Old 11-03-2009, 12:59 PM   #1
Lizardwoman85
Senior Member
(female)
 
Join Date: May 2008
Location: Louisville, KY
Posts: 146
Unhappy Thinking maybe it is time, where to get started?

So I currently living in Illinois. I was diagnosed with Fibromyalgia for about a year, along with a chronic injury to my hand and ankle. I also suffer from severe depression and anxiety.

I have been fighting this and resisting this, but after my last surgery, I've been off work and I've gotten so much worse (even with trying to keep up with exercise) that there is no way I am going to be able to return to work. I've had the pain get so bad a few times I have nearly passed out, just walking short distances. And now my doctor is starting me on some intense therapy that will take away the majority of my work hours anyway.

So I guess I just need to know where to get started. I know this is going to be incredibly hard because I'm young, and haven't been diagnosed for very long.

I'm terrified and so depressed at this point over all of this.

Any help is greatly appreciated!
-Liz
Lizardwoman85 is offline
 
Reply With Quote
Sponsors Lightbulb
 
   
Old 11-03-2009, 03:21 PM   #2
armyofone0508
Senior Member
(female)
 
Join Date: Dec 2008
Location: NRH, Texas
Posts: 162
Re: Thinking maybe it is time, where to get started?

don't sweat it. i'm pretty young, too (24), and i've was diagnosed in sep 07, but started really affecting work in jan 09. i was approved in april 09 after applying in feb 09. start by filling out the application and adult report online. then they'll give you a call and go from there.
__________________
Diagnosed:
Schizo-Affective
Depression
ADHD
Anxiety

Meds:
Xanax XR
Lithium
Adderall XR
Invega

****DUE JULY 22, 2010*****
armyofone0508 is offline
 
Reply With Quote
Old 11-03-2009, 04:46 PM   #3
deb53
Senior Veteran
(female)
 
Join Date: Jul 2007
Location: Richmond, Va. USA
Posts: 1,044
Re: Thinking maybe it is time, where to get started?

Hey Liz,
I too struggled with the decision to apply for SSD. Getting approved is USUALLY quite a long process so go ahead and get started. Get all of your doctors names, addresses and phone numbers together, a list of all your meds with dosages and frequency. Think about all the side effects of your meds and how these side effects could keep you from working at a job. Have everything all together and then start your application online. You don't have to do it all in one sitting, you can save it and come back to it. It is a long application. After you send it online (save a copy for your records) the social security office will call and ask you for anything else they may need.
Remember this...just because you apply doesn't mean you are committed for the rest of your life. If they find a cure for fibro or find the right combo of drugs for you, you can stop SSD and go back to work. Sometimes it is only a temporary thing for people.
By all means go on and apply though. In my state the average length of time from applying to approval is ~ 15 months!!

Good luck!

Deb

Last edited by deb53; 11-03-2009 at 04:46 PM.
deb53 is offline
 
Reply With Quote
Old 11-03-2009, 05:04 PM   #4
hessie28
Senior Veteran
(female)
 
Join Date: Oct 2006
Location: dumont, NJ
Posts: 1,284
Re: Thinking maybe it is time, where to get started?

Gool luck with your claim. Your age will be a big part. So, please prepare yourself to wait. I'm 44 and just got approved after 2 1/2 years of appeals.

The biggest piece of advice I can offer is keep going to your doctors on a regular basis so everything can be documented.

I filed online and then hand delievered all my related paperwork. My husband works near the SS office.

I can't think of anything else right now.

Good luck with your claim. Hope you feel better.
hessie28 is offline
 
Reply With Quote
Old 11-04-2009, 12:32 AM   #5
Executor
Senior Veteran
(female)
 
Join Date: Jan 2008
Posts: 3,932
Re: Thinking maybe it is time, where to get started?

Quote:
Originally Posted by Lizardwoman85 View Post

So I guess I just need to know where to get started. I know this is going to be incredibly hard because I'm young, and haven't been diagnosed for very long.

I'm terrified and so depressed at this point over all of this.

Any help is greatly appreciated!
What you're experiencing Liz is normal....We've all been through it....But there is a light at the end of the tunnel and the disability process is like chopping down a big tree....You gotta start swinging the ax and chop slowly and eventually the big tree will fall. And when it does, it's a great feeling. But, like the others have said, it takes some time, especially for younger people.

The best place to start is with your Doctor(s). The more medical documentation you have, the better. And specifically, it's best if you have a Dr. firmly in your corner....One who will proactively help you / back you in your disability claim. This doesn't mean someone who will give you good office notes / paperwork, but rather, someone who will say on the record that you are disabled....Either write a letter, fill out a form saying so, and etc.

When you've got a Doc like this, then SS has to point blank try to rebut this person.....And Docs don't like to disagree with each other as it can present all sorts of problems for them. Conversely, the path of least resistance is for a Doc to agree with another Doc.

However, if one's application only has the office notes, general medical information, and your statements / assessments, then SS really doesn't have to disagree....They can say that based on the information you've provided, you aren't disabled. Needless to say, this is a much different situation than one who has a Doc or two firmly in their corner saying they are disabled and here's why....yadda, yadda, yadda.

So, the best place to start is to visit with whatever Doc you think is most likely to back you and have a heart to heart with him/her as to why you want to pursue this avenue and ask for their support. The sooner you get a Doc's support / help and the sooner you get all your paper work and etc turned in, then the sooner things can get started and so on.

Keep in mind that some Docs don't like to get involved with disability....Whether it's the time, the paperwork, putting themselves on the spot, or whatever.....Some will weasel out of supporting a patient. Oh, they'll say all the right things behind closed doors, but when it comes to filling out paperwork or writing a letter, they just won't go there. So, if this happens, don't get frustrated or take it personally....Try to find another Doc. If whatever Doc is treating you currently does agree to help, then all the better. A lot of Docs will help, but some won't, so I just wanted to let you know up front just in case.

Lastly, there are a ton of posts out there from me and others who know the system, and I'd be glad to direct you to them and help as much as possible. So, you'll probably come across what I'm about to say.....The biggest mistake applicants make in applying for disability is focusing on the "condition" rather than the "effects" of the condition. I won't go into detail here, but will send you to a post where I do:

Thread: "Does Having Fibromyalgia Qualify for SSDI?"

http://www.healthboards.com/boards/showthread.php?p=4092513#post4092513

Please let me know if I can help further. I'd be glad to assist in anyway that I can.

Best of luck to you! Stay strong!

Regards,

Ex
Executor is offline
 
Reply With Quote
Reply Reply

Bookmarks

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off


Similar Threads
Thread Thread Starter Board Replies Last Post
Time to Get REAL....Serious! shay4bliss Addiction & Recovery 22 06-13-2007 10:31 PM
Sorry long post- Trying to get to root of my problems RAINIE73 General Health 6 05-05-2007 01:02 PM
When is it time to get help? aleash Eating Disorder Recovery 7 09-23-2005 10:58 PM
Need Help to get started ruedi94 Weight Loss 2 11-17-2003 01:05 AM
Ok here it is....my nightmare story of misdiagnosis - caution long story !!! KristiM Dental Problems 5 04-16-2001 06:34 PM










All times are GMT -4. The time now is 11:03 AM.


Site owned and operated by HealthBoards.com (TM)
Copyright and Terms of Use © 1998-2010 HealthBoards.com (TM) All rights reserved.
Do not copy or redistribute in any form!