Having this condition has taken its toll on me, I have been suffering for two and a half years had 3 ercps, have had Botox twice and a sphincterotomy which caused the perforation and two months later a lap choly as a result of the sod damaging my gallbladder( no stones). It causes terrible pain every day and everything that I eat makes it worse. I am also a piper and can't manage to play my bagpipes any more, as this causes more pain and symptoms i.e. feeling sick, itching, fatigue, pain..., my skin is a very bad colour, so I look very unwell. Do you ever get better from this?, it seems to be very hard to treat. My life is on hold at the moment, I miss my old life very much.