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Old 11-03-2009, 06:40 PM   #1
Sher_A
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Join Date: Dec 2004
Posts: 33
Facing thyroid surgery - goiter

I’m new to the board and scared. I’ve never had a thyroid problem in my life, or any kind of surgery. Found out I have a goiter with “a solitary 3.0 cm heterogeneously solid mass associated with the left lobe.” Blood test shows TSH third generation 1.56 whatever that means. This is big news to me. So much for living a healthful life. I saw an endocrinologist today and he gave me several choices. Biopsies and ultrasounds for the rest of my life if it isn’t malignant. Or, I can just get the thing cut out now and hope it is benign and be done with it. So I opted to have it cut out and get it over with. I have 2 visits left until the end of the year with my insurance, so I have to move fast. I am tired of worrying about this. I guess by getting it cut out I’ll be on meds for the rest of my life. Don’t even want to think about it being malignant, not yet. The doctor doesn’t think that it is. I’m 59 years old, feel and look good, so this is a huge surprise. My questions: what typically causes goiters? what does heterogenous mean in plain English? will it affect my voice? how radical is the surgery? how bad is it going to hurt afterward? wondering what kinds of medications I’ll have to take. Also wondering if I should pursue this in India instead of here in the US. Please help?

Last edited by Sher_A; 11-03-2009 at 07:15 PM.
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Old 11-03-2009, 08:13 PM   #2
Reece
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Re: Facing thyroid surgery - goiter

A goiter is an enlarged thyroid (the thyroid growing large itself). A mass or a nodule is more like a growth or tumor growing on the thyroid---sounds more like what you are describing. These are usually benign, but the right thing to do is to get it out, as yours is on the larger side for these things---as a normal thyroid lobe is about 3-4 cm in size, so yours is comparatively large for the area.

I found a 2.5 cm nodule, I felt fine, no thyroid issues, I had a needle biopsy. Did you have one yet? What were the results?

If they only take out one lobe, you might not need to be on medication. The medication is not really medication, but replacement hormone. I've been doing fine on it. I actually had thyroid cancer---you likely don't, but if you do, it's easily treatable, and usually curable, unlike others.

I thankfully live a full and busy life without my thyroid, I don't miss it at all. You need to have a good attitude to go through this crazy stuff.

Make sure you have a great surgeon that you feel confident in. Mine had a great deal of thyroid experience, and that made the process much easier. I had a weak voice for a couple of months, but then I was fine. I didn't have any calcium issues, but that is something to watch for after surgery.

As far as surgeries go, this one was pretty easy for me, I was up and about pretty quickly, and went to some family events within 2 days.

Good luck with your surgery, hope it's as easy breezy as mine was, and wishing you benign results!
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Old 11-03-2009, 10:00 PM   #3
Summer2928
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Re: Facing thyroid surgery - goiter

Quote:
Originally Posted by Reece View Post
I thankfully live a full and busy life without my thyroid, I don't miss it at all. You need to have a good attitude to go through this crazy stuff.

Reece, how long have you lived without your thryroid? When did you have your surgery done? What do you take as a replacment therapy, and what dose? How old were you when you had your sugery? You don't have to answer the last question, I am not sure if it is an apporpirate question. Thank you.
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Old 11-04-2009, 09:12 AM   #4
Reece
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Re: Facing thyroid surgery - goiter

I had the surgery 5 years ago, I was under 40, I was first on synthroid only, (after RAI for which I was on no meds for a month and a half), then I added cytomel, then I no longer needed cytomel, and now I'm on synthroid only (150/175 mcg alternating---I have to keep my tsh suppressed for a few more years until menopause) I'm small just over 5 feet. It took a while to feel normal on synthroid, quite a few months, but then I felt fine.
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Old 11-05-2009, 10:28 PM   #5
Summer2928
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Re: Facing thyroid surgery - goiter

Thank you, Reece, for reply. Even though I did not understand what menopause has to do with TSH suppression, I guess, there must be some connection.
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