HI there -- welcome, and sorry to hear about your diagnosis. If you have adenocarcinoma in situ, you don't have invasive cancer, and this is often also called Stage 0 cancer (also AIS for short). Generally when AIS is detected through a biopsy the next step is a cold knife cone (CKC) procedure so that the margins can be better assessed. It's very similar to a LEEP procedure, except that it is done under general anesthesia and a scalpel is used instead of the instrument used during the LEEP, which burns the tissue edges, which can be a problem if the margins are close. The scalpel will give nice clean edges to read.
If you are done having children, a lot of gyns will recommend (and even insist!) that a hyst is necessary/recommended even for AIS, which is non-invasive cancer. However, even with invasive cancer, if it's caught early enough, either a CKC with sufficient margins or a trachelectomy (which is a nearly complete cervix removal, but still retains fertility) is an option.
I would strongly suggest seeking an opinion with a gyn oncologist, as they are much more familiar with these issues, and can suggest less radical options. A lot of ob/gyns will jump right to the hyst option. I was diagnosed with AIS after a colpo and biopsy, and my CKC revealed that it was Stage 1a2/1b1 invasive adenocarcinoma. When my gyn told me the AIS diagnosis, he also said I would need a hyst if it turned out to be invasive. He was wrong. I qualified for -- and received -- a trachelectomy instead. In retrospect, I would have just opted for a second, larger CKC procedure, which is what some cancer centers are now recommending for early stage cancers.
I would suggest talking to your doctor about why he is doing a LEEP rather than a CKC with an AIS diagnosis. And definitely try to see a gyn/onc!!
Good luck, and please keep us posted.
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