Hi there! My names suzanna and yes I can relate to you symptoms. I only had my tmj diagnosed 3 days ago, but I have had it for 3 years and have been unable to work for those 3 years due to the pain,
I have terrible panic attacks and have been agrophobic for a year now. I at the begining of this year tried to start a job doing bar work. From 9-3/4am in the morning whilst looking after two small children. On the fourth night I worked I had to come home cos my son was ill. A week later I woke and could hadily move. My neck was all locked up and for a week I could barely move. I was told I had whiplash. I suffered for many days like this. A month later I went to see a chest doc about some chest pains I had been getting and he found multiple lymph nodes enlarged, some of which I hadnt even noticed. My bloods came back all ok I was tested for a lot of things. Since then I have had a lot of probs with my neck, spasms, knots lumps and bumps. My shoulders get sooo tense I feel like a robot. I guess its stress but it causes tension headaches etc, that no painkiller will relieve. I now make sure at the same time of evening every evening I have an aromatherepy bath quite hot and soak for at least half and hour. I sometimes get soo stressed that my neck and head feel like Im having a seizure or something and I do get very dizzy.
My tmj flared up bad 2 months ago and I was in absolute agony with my ear, convinced I have an infection I saw the doc, he said my ears were fine, but the whole of the left side of my face felt like it was on fire. My scalp flares up too and feels like someone has poured petrol over my head and set it a lite. I have nearly fainted soo many times and I guess it is part of the tmj. My dentist seems to think so. I cannot suggest anything great, as I have been so beside my self in pain I have wanted to end it all so many times recently. But keep strong and listen to others more strong on this board, as these people seen to know what you are going through. Im sorry I cant be of much help, but I thought it may help knowing that you are NOT alone in this.
GOOD LUCK
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