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Old 01-06-2003, 07:45 PM   #1
NugIsHere
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Join Date: Aug 2002
Posts: 47
Exclamation 2nd time posting... still undiagnosed and just getting more frusterated..

First of all, I'm 17 years old, I've been sick since I was 13, infact, on January 8th, it will be 4 years. It all started on Dec. 18th of 98.. i got cold.. no big deal right? Until the 26th, it was just cold symptoms,then the 26th i was cold, and shakey, that night i slept on the floor cuz i couldnt get comfortable. The 28th, we went to the doctor.. she looked down my throat and said i had bronchitis, without doing a throat culture or anything. I got a shot, and antibiotics. For the next 3 weeks, still had the same symptoms.. the first week of January, i came home everyday from shool, cause i was either dizzy, lightheaded, or had headaches. Then the worst day of my life came.. January 8th, 1999. I was walking in the mall with my mom, and my left knee started to hurt. We went to the doctors, she sent us to get a blood test, and x-rays, which later came back negative. A week later, I was in the ER, cause my body was throbbing, which i thought was the worst feeling ever, boy was i wrong! So 4 years later.. I have constant pain in both legs, 24/7, it never goes away. Its from my waist down to my ankles, my feet dont hurt though. Every couple months, the pain gets worse, and last for 2-3 months then goes back to the normal pain. Well, January 25th, 2002, i got worse pain, and it hasnt gone back yet. My whole body is hypersensitive, my legs to the touch of a kleenex. When people hug me, they know not to do it too tight, cause it will hurt. Ive been to over 50 doctors, had 22 blood tests, 2 EMG tests, a bone scan and 6 MRIs, right now im going to 2 of the best doctors in southern california. One is an MS specialist and ones a Infectious Disease Doctor. The ID doctor has over 5000 active patients, in over 13 different states, and they both pretty much told me they dont know what else to do. Theyre not so much trying to find a diagnosis, but theyre trying to treat my symptoms..since september, ive been on, Carbatrol, Tegretol, Zonegran, Lamictal, Nortriptyline, Lexapro, and Sinequan. Some i had to stop cause of side effects, but none worked. Like I said, I'm 17, and everyone says Im every mature for my age. Everyone thinks im so tough, but inside, i'm so scared, its unbelievable... some nights ill just cry myself to sleep cause the only relief of pain i have is pain meds and at my age, or any age, i dont want to have to take pain meds to feel a little temorary relief. I just said something about pain meds and my age and i get so mad when other people do that! Pain doesnt have an age. Next Friday I go to another new dr.. shes at the pain center.. i think its just alternatives insead of pain meds... im not willing to try biofeedback, i just dont believe in it. After that dr.. We're going to the Mayo Clinic. We're going to the one in Arizona. I really think this all started with the cold or whatever it was i had.. it just kinda led into it. But, who knows? If youve heard of something simalur, please, let me know. Thanks.

-Nug http://www.healthboards.com/ubb/dizzy.gif
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Old 01-06-2003, 08:42 PM   #2
Tree Frog
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Hi NugIsHere,
Sounds like a lot like me.
My story is here:

Let's tell Our Stories [url="http://www.healthboards.com/ubb/Forum118/HTML/000045.html"]http://www.healthboards.com/ubb/Forum118/HTML/000045.html[/url]
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Old 01-07-2003, 05:50 AM   #3
Merrida
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Do you have a rash or any type of skin disorder?

I once experienced something similar on my body but it included a skin reaction of some type. The weight of a bed sheet was enough to cause me extreme pain. I could not wear anything directly touching my skin, especially nothing tight or elastic, but even fabric draped on my skin hurt like crazy. I was also very sensitive to different TYPES of material.

Well, I was hypersensitive to a lot of things, still am, but that was one. But for me, my feet hurt a lot, and my toes. The bed sheet had to be draped over a frame because the "weight" of the sheet over my toes would feel like seering pain.

Out of curiosity why don't you believe in biofeedback? Have you looked into it?
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Old 01-07-2003, 04:19 PM   #4
NugIsHere
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Join Date: Aug 2002
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Merrida... No, I dont have any visable things on my skin.. never any redness, or swelling or anything. The first couple months that this started, if my legs were cold, my knees would be hot..thats about it. I don't believe in biofeedback, cause i've tried it. I don't see how concentrating on your breathing or other things, will make pain stuff... to me it was just sort of a little too fake.

-Nug http://www.healthboards.com/ubb/dizzy.gif
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Old 01-07-2003, 06:18 PM   #5
Blue4U2
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Biofeedback is designed to help you gain mind control over your pain.

It helps reduce anxiety associated with it.

My friend has something called neuropathy.
I am NOT saying you do, but, perhaps getting more tests would be a good idea.

Have you been checked for diabetes? Back problems?

Blue

 
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