It appears you have not yet registered with our community. To register please click here...


 Home Message Boards Health Guide Join for Free User Blogs Board Index
Search
 
Forgot your username or password?
Old 02-01-2004, 09:15 PM   #1
Administrator
Administrator
 
Join Date: May 2000
Posts: 3,601
Feel free to post your Stories here >>>

Thanks very much!
__________________
Problems?
BEFORE you post or email, please read the FAQ "How to", Posting Rules, and the sticky posts on the board you wish to use.

Last edited by Administrator; 06-07-2004 at 11:32 PM.
Administrator is offline
 
Sponsors Lightbulb
 
   
Old 04-28-2004, 05:17 AM   #2
angelbear1768
Junior Member
(female)
 
Join Date: Apr 2004
Posts: 22
My story

Hi everyone nice to meet you all. I am 36 female wife, mother of two, 20 and soon to be 17, and chronic pain sufferer. My oldest is getting married in Aug. He has a son of his own will be 1 in June and fiance has 3yr old daughter. My youngest is multihandicapped but a joy nonethe less. My DX;s are lupus/fibro, late lyme disease, RLS(restless leg syndrome though mine is all through body) PlMD(periodic limb movement disorder(looks like seizures in sleep preventing REM sleep), chronic migraines, DDD(degen disc disease) and chronic mild low grade depression(duh)

Anyway my most dominate problem at moment is DDD and lyme. I am a nurse and so far have found most docs to be moron's not nice to say but true. So far pain is not well controlled. Current meds if interrested are klonopin for PLMD and RLS, zanaflex for horrible muscle spasms, doxycycline for lyme, ASA for lupus anticoagulant, premarin for total hyst in Nov., duragesic for pain and vicuprofen for BT pain, elavil for sleep and chronic pain and depression.

I still work part time though it is getting harder and harder other than that I am a reclyner and bed ridden hermit and burden to the most wonderful hubby on earth. Boring though it maybe that is my story and I am sticken to it. Thanks for listening and being here.

Last edited by Administrator; 07-09-2004 at 07:43 PM. Reason: changed title
angelbear1768 is offline
 
Old 06-23-2004, 08:20 AM   #3
tabbott
Newbie
 
Join Date: Jun 2004
Posts: 3
Re: Feel free to post your Stories here >>>

Quote:
Originally Posted by moderator1
Thanks very much!
hi,i am a new member let me state some info about myself. i am a 39 year old male. i am a single parent of one son.through the years we have a very close realationship he's my littl buddy.when i was 28 years old i washit head on by a drunk driver.this accident severed both hips in half,compound fractured right ankle,broken cheek bone,and my tendens and ligamentsin my knees damaged. through the years i have had many surgeries. leaving me a chronic pain patiant.i am a electrician.at this time i have to work because disability would not begin to give my son and i avery good quality of life.on the other hand i have a lot to be thankfull for i have wonderfull parents still living and a wonderful son.i have to go to work in a bit and i type slow.to make a long story short i havesuffered from 28-34 and at that time my ortho said my only hope of any quuality of life would be pm. so i have a really good pm dr that understands my situation and to sum it up he keeps me putting food on the table and hualts about 50%of my pain. i willtalk latr becuase i could really use some friend that can fathom my day.thanks. hi, its thursday morning and i am going to edit my post due to running short on time yesterday.i have been undr pm. care for 4-years now. 2-years ago i thought that i had my pain under control but every morning when i got out of bed all my joints would be locked . at work every time i would neal down i would be in terrible pain tring to get up,so the following pm visit i spoke of new problems and pm dr. orderd a mri. come to find out i now have rumitory arthritis through out all of my joints.to say the least finding that out was, well i really cant put it into words other than i pray every day that i will make it through another day at work.even with all my pain meds i now start my day about 4 am with meds and hot tub at lunch time its more meds and hot tub,at night i try to swim at the ymca. it seems now i spend about 2-3 hours a day in the water along with pt.it takes all three areas meds, pt, water to get me through the day.all i can do is just keep ontop of the fight.i stiil feel thankfull though becuase i n know thier are many chronic pain patiants out thier going through alot more than me.excuse my spelling and i hope to talk to someone soon .sincerly tabbot. ::

Last edited by tabbott; 06-24-2004 at 12:46 PM.
tabbott is offline
 
Old 07-28-2004, 01:09 AM   #4
vamp36
Senior Veteran
 
Join Date: Jul 2004
Location: Wisconsin
Posts: 514
Re: Feel free to post your Stories here >>>

I am new here as well. I am a 33 yr. old female, divorced with 2 boys ages 8 & 9 yrs. I have always been very healthy until February of this year. I ended up VERY sick with a liver problem. After 1 week in our hospital and the removal of my dead galbladder & a liver biopsy I was sent to the University hospital 3 hours away. Finally got a diagnosis of Autoimmune Hepatitis. It's a disorder where my immune system is attacking my liver and pancreas. I remained there for 2 more weeks. I've been in the hospital 3 more times and 2 more ERCP procedures since then. I suffer from very bad pain in my liver area. My liver is twice the size as normal. SO I'm dealing with the major pain on meds and many other meds that I have to take on a daily basis. And my docs are trying to figure out what to do next. Eventually a liver transplant will be part of that plan I'm told. It will cure my sick liver but I will still have the Autoimmune problem and it could attack the new liver as well. I never knew a liver could cause so much pain. I have been finally been accepted for temporary disability for now through my work insurance.
THis board is wonderful. There are so many caring people here . Thank YOu
Also My Autoimmune disorder is hereditary. The docs found the "markers" for it in my blood. Now I"m going to have my kids tested to see if they may develop it someday. I hope not!!!!!

Last edited by tinavamp; 07-28-2004 at 11:57 AM.
vamp36 is offline
 
Old 08-03-2004, 02:25 PM   #5
wolfrider
Junior Member
 
Join Date: Apr 2004
Location: midsouth
Posts: 18
Old lurker able to talk now

Where to start?? I'm a 52 wife/mom/granny. I worked for ma bell 19 yr. and was FORCED to retire on disabilty in 1992. Had been a lineman,central office wireing tech. blah blah blah. I was a tomboy and very, very fit! When I was 24 I fell 18 ' from a pole and hit the ground twice (caught a barb wire fence it bounced me back up) and knocked me out. A co-worker found me and got me to the hospital where they found I had a concussion but from x-ray tech in 1974 didn't find my back problems. Had bach ache's and problems off and on they would usually ease up in 2-3 weeks but I figured they came with the turf < you (a woman} do a mans job you pay the price> I loved what I did and it almost killed me to know I would never be able to work again. Its been 12 years now I'm still bitter over it. Any way back to the subject. In 1992 I was getting ready for work and STARTED to bend over in the bathroom to get a something or other and BAM I couldn't move!!! My then husband was in bed not 8' from me and the pain was so intense I couldn't call loud enough to even wake him!! finially got him awake and he carried me to bed.I could not make my legs move for love nor money!! He called our pcp and he called in pain meds. and muscle relaxers. My ex keep me knocked out for about 2 weeks carrying me to the bathroom when I needed to go ect. Then went for and MRI to find out I had buldged 4 disk ,have DDD,spinal stenoses? and from there to a PT that had a full immersion water tank where it took me 4 mo. to be able to walk again. Long story short, instead of getting better my problems snowballed on me. Being on all types of pain med. antidepressents, muscle relaxers and other meds you all know the drill on tolerance, was changed to methadone in 2000 besides my other meds. Then in Sept.-Dec. of 2003 started having having black-outs. Told my pcp and he said that I had built up toxic levels of meds and needed to detox them out. I did so in hospital beause of med problems and almost died from complications, they also think I had atleast one stroke or more! I have lost memories, of every thing from how to cook to how to turn on the computer!!! I was a geek LOL but no more not even basic things!! Now from Jan to Now I went through every med my doc threw at me from nuronton sp? to ultracet effexor, all muscle relaxers I don't even remember them all trying to stay away from the narcotics. None worked I was a veg. from the pain for 6 mo. Finally wrote a letter ( thax Shoreline) and got my doc to realize just how my life wasn't anything more than just existing and trying to get through the day till nite when I could get 1-2 hr of sleep the only time I didn't hurt so bad. Wanting to stay low on the narcotics he added norco 10, 4 X day in Jun. This has allowed me to at least sit up to eat and not be a complete veg. though the pain level is still running 7-8 it beats the excruciating pain I was in. I'm still haveing protracted w/d symptoms but some are wearing off,so far still no luck with the memories but I still keep the faith that some if not all will come back this has had me sooo depressed and embarassed to have to ask my hubby of six years, {not the other b*****d} things I should know but don't, I feel he gets upset that I don't remember I do feel he loves me but dosen't understand what I went through with detox and the last 7 mo. Mine wasn't the norm detox in !! Even I don't understand it!! I go back to pcp tomorrow will see what he says, I went to my pain mang. doc and had the 3 round of epidurals 2 week apart, that helped some . My pcp is supposed to call my pm to see about putting me back under his care they both have been good to me so we'll see what happens. So thats most of my story sorry its so long. I look forward to being online line more and makeing friends with people that understand, it helps to have someone like yourself to talk to. Thax for listening.
wolfrider is offline
 
Closed Thread

Bookmarks

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off


Similar Threads
Thread Thread Starter Board Replies Last Post
Need advice... waswell Pain Management 0 06-21-2005 02:59 PM










All times are GMT -4. The time now is 03:02 AM.


Site owned and operated by HealthBoards.com (TM)
Copyright and Terms of Use © 1998-2010 HealthBoards.com (TM) All rights reserved.
Do not copy or redistribute in any form!