Treatment for Leaky-gut syndrome due to MMR vaccine

[krisyd]

My almost 3 year old son will be tested in March for Autism. If anything his disorder is behavior related. He is high functioning but has some problems with appropriate social behavior. I am almost 100% positive that his behavior is related to the intestinal problem of leaky-gut syndrome. I have noticed that if he has a cold and spends most of that day not eating, his behavior is as close to normal as can be. He is on a strict diet that consists of no dyes or preservatives and no sugar. He has a high IgG allergy to many foods, including wheat, eggs, milk, soy, gluten, and many others. If he gets any of these foods, he becomes very difficult with biting, screaming, fear, and loss of eye contact. In general he is quite strong willed, but it seems as though he lacks common sense. He is smart and his language is doing great. However, he is so unpredictable, that it is even hard to try to potty train him. I was told that I should try to have a biopsy of his intestines done to find out if the MMR vaccine or flu vaccine he received, had caused a reaction in his intestines. I was also told that if that was the case they may be able to treat the intestinal lining so as to repair it with a type of antiinflammatory for the intestinal lining. I know this is the main problem, and his allergy is clearly an intolerance because he shows up negative for any allergy on the IgE, but positive on the IgG. We paid out of pocket to have tests done by a research lab. They say the IgG is what should be tested when there are behavioral reactions to foods, so we did. This a clear indicator for intestinal intolerances to foods. Please fill me in if you have any info Re: treatment for leaky gut syndrome. Currently my son is on Nystatin for Candida, Culturelle GG (Probiotic) for Clostridium Diff. He is doing 80% better than when this all began, 2 years ago. Thank you Krisyd

[really useful engine]

also add folic acid and good quality pure cod-liver oil. Don't overdose on the CLO though.

[oliverthomas]

Hi,
Thank you for your reply to my letter, and sorry it has taken a while to get back to you. I am sorry that you are having such problems, it is just as difficult to get appropriate input in the U.K. particularly when MMR damage is suspected.
My son, Oliver is also on a cf/gf diet. He had diarrhoea for almost a year before I managed to get him assessed by Dr Andrew Wakefield's team at the Royal Free Hospital in London. Our local medics refused to accept that he had problems. When eventually he had an x-ray of his abdomen, he was found to be clinically loaded. His rectum was stretched to 3x normal size and he had a faecal mass throughout his entire large intestine. The "diarrhoea" had been overflow. He began a laxative regime, and this is when we saw the most significant improvement in behaviour and his speech began to return. We then had to pay for an endoscopy and colonoscopy, because our health authority refused funding. Oliver was found to have oesophagitis, ileal-lymphoid nodular hyperplasia, colitis and proctitis. Paul Shattock from the Autism Research Unit in Sunderland, tested his urine and found !opioid peptides, indicating a leaky bowel. Oliver now is still on laxatives to try and prevent the mass reforming. He takes ranitidine for his oesophagitis and reflux, and he takes salazopyrin for the inflammation throughout the rest of his intestine. Interestingly, if he inadvertently gets any gluten, he does not react at all, and I wonder if the drugs are maintaining a good enough gut permeability to prevent the peptides getting through.
Oliver's case is one of the 8 that have recently been put to the High court in London, as part of the litigation against MMR manufacturers. Because of this, his biopsy result was fast tracked, and he has measles virus in his bowel tissue.
At present, we have not tested for mercury.
I don't know if any of this is of help to you? We certainly found that introduction of laxatives seemed to be of most benefit, though the improvement did plateau out. At present, Oliver's speech is improving, but his general behaviour is worsening and he is becoming increasingly aggressive.
If you want any contact numbers for Andy Wakefield, Paul Shattock etc let me know.
Best wishes
from
Julie Loch

[oliverthomas]

Hi,
Thank you for your reply to my letter, and sorry it has taken a while to get back to you. I am sorry that you are having such problems, it is just as difficult to get appropriate input in the U.K. particularly when MMR damage is suspected.
My son, Oliver is also on a cf/gf diet. He had diarrhoea for almost a year before I managed to get him assessed by Dr Andrew Wakefield's team at the Royal Free Hospital in London. Our local medics refused to accept that he had problems. When eventually he had an x-ray of his abdomen, he was found to be clinically loaded. His rectum was stretched to 3x normal size and he had a faecal mass throughout his entire large intestine. The "diarrhoea" had been overflow. He began a laxative regime, and this is when we saw the most significant improvement in behaviour and his speech began to return. We then had to pay for an endoscopy and colonoscopy, because our health authority refused funding. Oliver was found to have oesophagitis, ileal-lymphoid nodular hyperplasia, colitis and proctitis. Paul Shattock from the Autism Research Unit in Sunderland, tested his urine and found !opioid peptides, indicating a leaky bowel. Oliver now is still on laxatives to try and prevent the mass reforming. He takes ranitidine for his oesophagitis and reflux, and he takes salazopyrin for the inflammation throughout the rest of his intestine. Interestingly, if he inadvertently gets any gluten, he does not react at all, and I wonder if the drugs are maintaining a good enough gut permeability to prevent the peptides getting through.
Oliver's case is one of the 8 that have recently been put to the High court in London, as part of the litigation against MMR manufacturers. Because of this, his biopsy result was fast tracked, and he has measles virus in his bowel tissue.
At present, we have not tested for mercury.
I don't know if any of this is of help to you? We certainly found that introduction of laxatives seemed to be of most benefit, though the improvement did plateau out. At present, Oliver's speech is improving, but his general behaviour is worsening and he is becoming increasingly aggressive.
If you want any contact numbers for Andy Wakefield, Paul Shattock etc let me know.
Best wishes
from
Julie Loch

[krisyd]

Hi Oliverthomas,
Sorry so late. I was wondering if your child was ever testd for mercury? My son had the hair analysis and it was said to be normal. I am excited about that but concerned because I know something is wrong with his intestines. I am apprehensive about the intestinal biopsy, but I realize that we need to know what is causing the major allergies and irregular stool patterns. Have you got any advice as to who to call and where to start. Thank you again