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Old 09-25-2003, 11:37 PM   #1
loriguy
Newbie
 
Join Date: Sep 2003
Location: Hoboken, NJ USA
Posts: 3
Post spondylolesthesis

Hi,
I am 27 and a few months ago it seems like I just woke up with spondylolesthesis. I have been to 4 or 5 doctors for different opinions and honestly the only doctor that told me I didnt' need surgery was a chiropractor. Obviously the idea of having surgery on my spine doesn't exactly appeal to me. I can't help but think of all of the complications that could happen. Is there anyone out there who has had this "minimally" invasive surgery (that requires blood transfusions?)
Scared to death,
Lori
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Old 09-26-2003, 05:27 AM   #2
Mim
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Join Date: Sep 2003
Location: Hobart, Tasmania, Australia
Posts: 10
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Hi Lori,
I am 26, and also recently discovered I had spondylolisthesis. I was about 16 weeks pregnant (over 3 years ago), when I started getting back pain, sciatica etc. Everyone said that it was normal because I was pregnant. I discovered 18 months later that I had congenital spondylolisthesis with a slipped disc which was probably causing the back pain etc. Most people recommend conservative measures to try and help with the pain. Chiropractors may also try to help (but didn't help me). I was told that I would eventually need a spinal fusion to stabilise the spine, or the disc may slip further. I was also told that if I wanted any more children, that I had to have a spinal fusion, or be on complete bed rest. So I decided to go with the fusion. I had the spinal fusion L4-L5-S1 1 year ago today. They were only going to fuse L5-S1, but decided to also fuse L4 when they were in there, to stabilise it further. It is a big operation, you cannot do much when you have it. You may need to have up to 6 months off work. I took 5 months off work, and studied some more whilst lying down. Now I work at home, and can do a lot of work lying down with a lap top. It is still hard to sit or stand for really long periods of time, as my back aches. I don't have the sciatica that I had before the operation, so that is a bonus. I was told it may take up to 2 years for the nerves to heal properly as it wasn't properly diagnosed (i.e. the slipped disc) for quite awhile. This may obviously be different for you. It is different for everyone, there are a lot of succesful fusions, particularly with the sophisticated technology that they have at the moment. If you have the surgery, it should be a last option. Try everything else, that is what everyone recommended to me. At least then if you have the surgery, you won't have regrets that you didn't try other things first to try and help your pain. If you do have the surgery you need to be as fit as possible, so do what you can now, particularly if this is an option for you. Most people are surprised that I had to have a fusion at my age, I think they are normally done in people that are older, when their backs 'wear out'. All the best with your decision. Take care, and God Bless. Mim
P.S. My operation was about 9.5 hours, they normally aren't this long though. They were trying out some new computer equipment on me. They also fused an extra level than they were going to. I didn't need a blood tranfusion, even after this long operation. So even if you have an operation, you may not need a transfusion!
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Old 09-26-2003, 06:06 AM   #3
Brooke79
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Join Date: Aug 2003
Location: Sydney, NSW, Australia
Posts: 584
Post

Hi

Believe me you have come to the right place. There are so many people here that have had the procedure and can tell you so much about it. Ask as many questions as you want and we'll do our best.
I am 24 (in a week :bouncing)) and i am scheduled to have my fusion for a grade 1 spondy in 4 weeks.
Do you know much about what a spondy is? If not visit my threads, one of them I gave quite a detailed description about exactly what the injury is and what it does to the surrounding muscles (i cant exactly remember which thread i posted in detail in but they have my name beside the posting topic).
Also check out good fusion outcomes wanted, Seans thread, there is wonderful advise there.

Welcome to our home away from home.

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Brooke
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October 2003 PLIF for L5S1 Spondy
May 2004 PLIF revision RHBMP2
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Old 09-26-2003, 10:35 AM   #4
loriguy
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Join Date: Sep 2003
Location: Hoboken, NJ USA
Posts: 3
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Thanks so much for your responses. How much pain does one have to be in in order to accept the fact that perhaps they should have surgery? I mean...when I was first diagnosed I had pain quite frequently. But never to the point where I couldn't walk or anything. Then the entire summer went by and I had really no pain at all. As soon as I put my high heels on recently the pain came back like crazy! I know I know I'm not supposed to be wearing high heels. What's a 5 foot nothing girl supposed to do? Ok I'll stay off the heels. Is there anyone out there who has some pain and has opted not to have surgery? I'll do whatever I have to do not to have surgery I'm just afraid that if I don't it will somehow affect my nerves and I will be incapacitated later on. But I guess I am afraid of the same thing happening if I do.
This really sucks.
Lori
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Old 09-26-2003, 10:46 AM   #5
scotty12
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(male)
 
Join Date: Sep 2003
Posts: 465
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hi lori,
my name is scott.im 35 years old and i too just woke up one day with sciatic pain that turned into extreme lower back pain within a couple of weeks.were both lucky i guess.diagnosed with grade 1 spondy and 3 herniated disks.its been almost a year and i actually had fusion surgury scheduled but at the last minute i started feeling much better.still in pain but now the pain meds work.
ive had 3 ESI's and the third one gave me some relief.i dropped a few pounds and exersize every day.it is so important to stregnthen your lower back and abs to take some pressure off your spine.this way if you do eventually need fusion,recovery will be easier on you.i dont know of any minimally evasive surgury for spondy.there are a select few hospitals that use a new bone growth protein(rhBMP-2)that eliminates the need for a bone graph from your hip.so recovery is much faster and the sucess rate is much better than traditional fusion.i see your from nj.the hospital for special surgury in ny does this procedure.dont rush into surgury as it is a major surgury that requires a long healing period.it is a last resort.get your ortho to refer you to a pain dr if your not seeing one now and are in pain. you should be going for pt atleast 2 times per week.me personally ,id rather live on pain meds as l;ong as they offer me some relief and i can continue to work then get the surgury done although i will eventually need it as spondy is usually progressive.....scott
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